Family Involvement and Symptom Burden in Nursing Home Residents with Cognitive Impairment
dc.contributor.author | Tucker, Gretchen | |
dc.contributor.author | Cagle, John | |
dc.contributor.author | Stump, Timothy | |
dc.contributor.author | Tu, Wanzhu | |
dc.contributor.author | Zhang, Peiyuan | |
dc.contributor.author | Floyd, Alex | |
dc.contributor.author | Ersek, Mary | |
dc.contributor.author | Unroe, Kathleen | |
dc.contributor.department | Medicine, School of Medicine | |
dc.date.accessioned | 2025-02-17T14:50:27Z | |
dc.date.available | 2025-02-17T14:50:27Z | |
dc.date.issued | 2024-12-31 | |
dc.description.abstract | Research suggests that family involvement improves the quality of life of nursing home residents. Using baseline data from an on-going multisite clinical trial (UPLIFT-AD), we examined the association between family involvement and staff-reported accounts of resident symptom burden. Symptom burden was measured as a composite of frequency and intensity of symptoms, using items from the End-of-Life Dementia (EOLD) scale. Higher scores indicate greater burden. Family involvement was measured by the family-reported average weekly in-person visit frequency over the past month (range 0-7 days). Data on 198 residents were collected, 61.9% of whom were in Indiana, with the remainder (38.1%) in Maryland. Of the 198 residents, 60.3% were female. The Brief Interview for Mental Status score, which indicates cognitive impairment level, was 6.5 (SD=3.9). Most family members were an adult child (58.7%), 7.9% were spouses, and 38.8% were “other.” On average, spouses visited 5 days a week, children 2 days a week, and other family members 1.5 days a week. In 53.5% of cases, the reporting staff member knew the resident for >1 year. Linear regression analysis was used to examine the associations between the frequency of in-person family visits and EOLD scores while adjusting for resident demographics, mental status, family relationship to the resident, and facility location. Visit frequency was associated with higher EOLD scores (B=0.18, p=.037). Findings suggest family involvement may sensitize nursing home staff to the presence of a resident’s burdensome symptoms, which may become more discernible to families with increased involvement. | |
dc.eprint.version | Final published version | |
dc.identifier.citation | Tucker G, Cagle J, Stump T, et al. FAMILY INVOLVEMENT AND SYMPTOM BURDEN IN NURSING HOME RESIDENTS WITH COGNITIVE IMPAIRMENT. Innov Aging. 2024;8(Suppl 1):578-579. Published 2024 Dec 31. doi:10.1093/geroni/igae098.1894 | |
dc.identifier.uri | https://hdl.handle.net/1805/45733 | |
dc.language.iso | en_US | |
dc.publisher | Oxford University Press | |
dc.relation.isversionof | 10.1093/geroni/igae098.1894 | |
dc.relation.journal | Innovation in Aging | |
dc.rights | Attribution 4.0 International | en |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0 | |
dc.source | PMC | |
dc.subject | Nursing home residents | |
dc.subject | Family involvement | |
dc.subject | Quality of life | |
dc.title | Family Involvement and Symptom Burden in Nursing Home Residents with Cognitive Impairment | |
dc.type | Article |