Family Involvement and Symptom Burden in Nursing Home Residents with Cognitive Impairment

dc.contributor.authorTucker, Gretchen
dc.contributor.authorCagle, John
dc.contributor.authorStump, Timothy
dc.contributor.authorTu, Wanzhu
dc.contributor.authorZhang, Peiyuan
dc.contributor.authorFloyd, Alex
dc.contributor.authorErsek, Mary
dc.contributor.authorUnroe, Kathleen
dc.contributor.departmentMedicine, School of Medicine
dc.date.accessioned2025-02-17T14:50:27Z
dc.date.available2025-02-17T14:50:27Z
dc.date.issued2024-12-31
dc.description.abstractResearch suggests that family involvement improves the quality of life of nursing home residents. Using baseline data from an on-going multisite clinical trial (UPLIFT-AD), we examined the association between family involvement and staff-reported accounts of resident symptom burden. Symptom burden was measured as a composite of frequency and intensity of symptoms, using items from the End-of-Life Dementia (EOLD) scale. Higher scores indicate greater burden. Family involvement was measured by the family-reported average weekly in-person visit frequency over the past month (range 0-7 days). Data on 198 residents were collected, 61.9% of whom were in Indiana, with the remainder (38.1%) in Maryland. Of the 198 residents, 60.3% were female. The Brief Interview for Mental Status score, which indicates cognitive impairment level, was 6.5 (SD=3.9). Most family members were an adult child (58.7%), 7.9% were spouses, and 38.8% were “other.” On average, spouses visited 5 days a week, children 2 days a week, and other family members 1.5 days a week. In 53.5% of cases, the reporting staff member knew the resident for >1 year. Linear regression analysis was used to examine the associations between the frequency of in-person family visits and EOLD scores while adjusting for resident demographics, mental status, family relationship to the resident, and facility location. Visit frequency was associated with higher EOLD scores (B=0.18, p=.037). Findings suggest family involvement may sensitize nursing home staff to the presence of a resident’s burdensome symptoms, which may become more discernible to families with increased involvement.
dc.eprint.versionFinal published version
dc.identifier.citationTucker G, Cagle J, Stump T, et al. FAMILY INVOLVEMENT AND SYMPTOM BURDEN IN NURSING HOME RESIDENTS WITH COGNITIVE IMPAIRMENT. Innov Aging. 2024;8(Suppl 1):578-579. Published 2024 Dec 31. doi:10.1093/geroni/igae098.1894
dc.identifier.urihttps://hdl.handle.net/1805/45733
dc.language.isoen_US
dc.publisherOxford University Press
dc.relation.isversionof10.1093/geroni/igae098.1894
dc.relation.journalInnovation in Aging
dc.rightsAttribution 4.0 Internationalen
dc.rights.urihttps://creativecommons.org/licenses/by/4.0
dc.sourcePMC
dc.subjectNursing home residents
dc.subjectFamily involvement
dc.subjectQuality of life
dc.titleFamily Involvement and Symptom Burden in Nursing Home Residents with Cognitive Impairment
dc.typeArticle
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