The Financial Challenges of Parents of a Child with Autism in Addis Ababa, Ethiopia: A Qualitative Study

Abstract

Little is known about the financial challenges of autism. This study looks into the financial challenges faced by parents of a child living with autism in Addis Ababa, Ethiopia. Twelve in-depth interviews and four key informant interviews were held with the professionals in Joy and Nehemiah Autism Centers. The participants were selected via the convenience sampling method. The data were transcribed and analyzed through thematic data analysis. All the participants underlined that caring for a child with autism spectrum disorder (ASD) requires extra cost, attention, and effort. Most of the participants complained about the financial burden in relation to the cost of fulfilling the basic needs (high cost of food and clothing), transportation, and medical expenses. The system has to proactively work to address the financial and other concerns of the parents. The service is limited and unsatisfactory compared to the need. On the service provision, the government should try and address the different unmet needs and challenges of these children and their parents by providing proper attention and financial support.