Patient and caregiver assessment of the benefits from the clinical use of amyloid PET imaging
dc.contributor.author | Mustafa, Rafid | |
dc.contributor.author | Brosch, Jared R. | |
dc.contributor.author | Rabinovici, Gil D. | |
dc.contributor.author | Dickerson, Brad | |
dc.contributor.author | Carrillo, Maria C. | |
dc.contributor.author | Glazier, Brad | |
dc.contributor.author | Gao, Sujuan | |
dc.contributor.author | Tierney, Martha | |
dc.contributor.author | Fargo, Keith N. | |
dc.contributor.author | Austrom, Mary G. | |
dc.contributor.author | De Santi, Susan | |
dc.contributor.author | Clark, David G. | |
dc.contributor.author | Apostolova, Liana | |
dc.contributor.department | Neurology, School of Medicine | en_US |
dc.date.accessioned | 2019-07-02T18:05:13Z | |
dc.date.available | 2019-07-02T18:05:13Z | |
dc.date.issued | 2018-01 | |
dc.description.abstract | INTRODUCTION: Few studies to date have explored patient and caregiver views on the clinical use of amyloid positron emission tomography (PET). METHODS: A 7-item questionnaire assessing patient and caregiver views (510 total respondents) toward amyloid PET imaging was advertised broadly through alz.org/trialmatch. RESULTS: We received 510 unique responses from 48 US states, 2 Canadian provinces, the Dominican Republic, and Greece. Both patients and caregivers indicated that they would want to receive amyloid imaging if offered the opportunity. Over 88% of respondents had a positive response (∼10% with neutral and 2% with negative responses) to whether amyloid PET should be offered routinely and be reimbursed. Such information was felt to be useful for long-term legal, financial, and health care planning. Respondents identifying with early age cognitive decline (younger than 65 y) were more likely to explore options for disability insurance (P=0.03). Responders from the Midwest were more likely to utilize information from amyloid imaging for legal planning (P=0.02), disability insurance (P=0.02), and life insurance (P=0.04) than other US regions. DISCUSSION: Patients and caregivers supported the use of amyloid PET imaging in clinical practice and felt that the information would provide significant benefits particularly in terms of future planning. | en_US |
dc.eprint.version | Author's manuscript | en_US |
dc.identifier.citation | Mustafa, R., Brosch, J. R., Rabinovici, G. D., Dickerson, B. C., Carrillo, M. C., Glazier, B. S., … Apostolova, L. G. (2018). Patient and Caregiver Assessment of the Benefits From the Clinical Use of Amyloid PET Imaging. Alzheimer disease and associated disorders, 32(1), 35–42. doi:10.1097/WAD.0000000000000220 | en_US |
dc.identifier.uri | https://hdl.handle.net/1805/19813 | |
dc.language.iso | en_US | en_US |
dc.publisher | Wolters Kluwer | en_US |
dc.relation.isversionof | 10.1097/WAD.0000000000000220 | en_US |
dc.relation.journal | Alzheimer Disease and Associated Disorders | en_US |
dc.rights | Publisher Policy | en_US |
dc.source | PMC | en_US |
dc.subject | Amyloid | en_US |
dc.subject | Positron emission tomography (PET) | en_US |
dc.subject | Clinical use | en_US |
dc.subject | Alzheimer’s disease (AD) | en_US |
dc.subject | Patient | en_US |
dc.subject | Caregiver | en_US |
dc.title | Patient and caregiver assessment of the benefits from the clinical use of amyloid PET imaging | en_US |
dc.type | Article | en_US |