The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor
dc.contributor.author | Donegan, Diane | |
dc.contributor.author | Gowan, Tayler | |
dc.contributor.author | Gruber, Rachel | |
dc.contributor.author | Cottingham, Ann | |
dc.contributor.author | Flanagan, Mindy | |
dc.contributor.author | Erickson, Dana | |
dc.contributor.author | Imperiale, Thomas F. | |
dc.contributor.department | Medicine, School of Medicine | en_US |
dc.date.accessioned | 2022-09-26T11:18:04Z | |
dc.date.available | 2022-09-26T11:18:04Z | |
dc.date.issued | 2021-04-07 | |
dc.description.abstract | Objectives: Brain tumors, including pituitary adenomas (PA), cause anxiety and distress, with a high unmet need for information correlating with increased anxiety. Condition-specific education may alleviate anxiety. We explored patients' experience around the diagnosis of a PA and piloted a patient education intervention to address peridiagnostic anxiety in adults diagnosed with PA. Methods: Anxiety, patient satisfaction, patient knowledge, and need for information were measured prior to, immediately after, and 1 month following the appointment in this multimethods study. A phone interview to explore patient diagnostic and intervention experiences was analyzed using qualitative methods. Results: A total of 17 patients participated in the study; 15 completed the interview. The baseline need for information was high. Disease-specific anxiety decreased, and patient knowledge and satisfaction increased significantly after the initial visit. Interview analysis identified 3 main themes: (1) the importance of communication; (2) the need for information; and (3) the impact of the diagnosis on patient experience. Conclusions: For patients with newly diagnosed PA, the diagnostic experience was associated with high levels of anxiety. Patients expressed a need for information. Information delivery reduced anxiety and had a positive impact on patient satisfaction. Practice implications: The study findings suggest a need for a streamlined diagnostic process with readily accessible information. | en_US |
dc.eprint.version | Final published version | en_US |
dc.identifier.citation | Donegan D, Gowan T, Gruber R, et al. The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor. J Endocr Soc. 2021;5(6):bvab061. Published 2021 Apr 7. doi:10.1210/jendso/bvab061 | en_US |
dc.identifier.uri | https://hdl.handle.net/1805/30108 | |
dc.language.iso | en_US | en_US |
dc.publisher | Endocrine Society | en_US |
dc.relation.isversionof | 10.1210/jendso/bvab061 | en_US |
dc.relation.journal | Journal of the Endocrine Society | en_US |
dc.rights | Attribution-NonCommercial-NoDerivatives 4.0 International | * |
dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | * |
dc.source | PMC | en_US |
dc.subject | Anxiety | en_US |
dc.subject | Patient satisfaction | en_US |
dc.subject | Pituitary tumors | en_US |
dc.subject | Diagnosis | en_US |
dc.subject | Patient education | en_US |
dc.title | The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor | en_US |
dc.type | Article | en_US |