The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor

dc.contributor.authorDonegan, Diane
dc.contributor.authorGowan, Tayler
dc.contributor.authorGruber, Rachel
dc.contributor.authorCottingham, Ann
dc.contributor.authorFlanagan, Mindy
dc.contributor.authorErickson, Dana
dc.contributor.authorImperiale, Thomas F.
dc.contributor.departmentMedicine, School of Medicineen_US
dc.date.accessioned2022-09-26T11:18:04Z
dc.date.available2022-09-26T11:18:04Z
dc.date.issued2021-04-07
dc.description.abstractObjectives: Brain tumors, including pituitary adenomas (PA), cause anxiety and distress, with a high unmet need for information correlating with increased anxiety. Condition-specific education may alleviate anxiety. We explored patients' experience around the diagnosis of a PA and piloted a patient education intervention to address peridiagnostic anxiety in adults diagnosed with PA. Methods: Anxiety, patient satisfaction, patient knowledge, and need for information were measured prior to, immediately after, and 1 month following the appointment in this multimethods study. A phone interview to explore patient diagnostic and intervention experiences was analyzed using qualitative methods. Results: A total of 17 patients participated in the study; 15 completed the interview. The baseline need for information was high. Disease-specific anxiety decreased, and patient knowledge and satisfaction increased significantly after the initial visit. Interview analysis identified 3 main themes: (1) the importance of communication; (2) the need for information; and (3) the impact of the diagnosis on patient experience. Conclusions: For patients with newly diagnosed PA, the diagnostic experience was associated with high levels of anxiety. Patients expressed a need for information. Information delivery reduced anxiety and had a positive impact on patient satisfaction. Practice implications: The study findings suggest a need for a streamlined diagnostic process with readily accessible information.en_US
dc.eprint.versionFinal published versionen_US
dc.identifier.citationDonegan D, Gowan T, Gruber R, et al. The Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumor. J Endocr Soc. 2021;5(6):bvab061. Published 2021 Apr 7. doi:10.1210/jendso/bvab061en_US
dc.identifier.urihttps://hdl.handle.net/1805/30108
dc.language.isoen_USen_US
dc.publisherEndocrine Societyen_US
dc.relation.isversionof10.1210/jendso/bvab061en_US
dc.relation.journalJournal of the Endocrine Societyen_US
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.sourcePMCen_US
dc.subjectAnxietyen_US
dc.subjectPatient satisfactionen_US
dc.subjectPituitary tumorsen_US
dc.subjectDiagnosisen_US
dc.subjectPatient educationen_US
dc.titleThe Need for Patient-centered Education Among Patients Newly Diagnosed With a Pituitary Tumoren_US
dc.typeArticleen_US
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