“Do they REALLY trust us”?: Lessons from a volunteer research registry

dc.contributor.authorSotto-Santiago, Sylk
dc.contributor.authorWiehe, Sarah
dc.contributor.authorHudson, Brenda
dc.contributor.authorSlaven, James
dc.contributor.authorVinaixa, Conor
dc.contributor.authorBruns, Rebecca
dc.contributor.authorClaxton, Gina
dc.contributor.authorDelp, Lynsey
dc.contributor.authorLynch, Dustin
dc.contributor.authorMoe, Sharon
dc.contributor.departmentMedicine, School of Medicine
dc.date.accessioned2025-01-27T10:02:47Z
dc.date.available2025-01-27T10:02:47Z
dc.date.issued2024-11-11
dc.description.abstractBackground: All IN for Health is a well-established community-academic partnership dedicated to helping improve the lives of Indiana residents by increasing health research literacy and promoting health resources, as well as opportunities to participate in research. It is sponsored by the Indiana Clinical and Translational Science Institute (I-CTSI). The study's purpose was to measure trust in biomedical research and healthcare organizations among research volunteers. Methods: The Relationship of Trust and Research Engagement (RTRE) survey was developed utilizing 3 validated scales. The RTRE consisted of 36 items in a 5-point Likert scale with three open-text questions. We conducted 3 focus groups with a total of 24 individuals ahead of the survey's launch. Recruitment was done through the All IN for Health newsletter. The survey was administered in the summer of 2022. Results: Six hundred and sixty-three individuals participated in the survey. Forty-one percent agreed that doctors do medical research for selfish reasons. Moreover, 50% disagree that patients get the same medical treatment regardless of race/ethnicity. Sixty-seven percent think it is safe to participate in medical research, yet 79% had never been asked to participate. Ten percent believe that researchers select minorities for their most dangerous studies and expose minoritized groups to diseases. Conclusion: The utilization of tools to measure trust will facilitate participant recruitment and will assist institutions and investigators alike in accountability. It is imperative, we work toward understanding our communities' trust in medical research, assessing our own trustworthiness, and critically reflect on the authenticity of our efforts.
dc.eprint.versionFinal published version
dc.identifier.citationSotto-Santiago S, Wiehe S, Hudson B, et al. "Do they REALLY trust us"?: Lessons from a volunteer research registry. J Clin Transl Sci. 2024;8(1):e196. Published 2024 Nov 11. doi:10.1017/cts.2024.584
dc.identifier.urihttps://hdl.handle.net/1805/45475
dc.language.isoen_US
dc.publisherCambridge University Press
dc.relation.isversionof10.1017/cts.2024.584
dc.relation.journalJournal of Clinical and Translational Science
dc.rightsAttribution 4.0 Internationalen
dc.rights.urihttps://creativecommons.org/licenses/by/4.0
dc.sourcePMC
dc.subjectTrust
dc.subjectTrustworthiness
dc.subjectRegistry
dc.subjectDiversity
dc.subjectClinical trials
dc.title“Do they REALLY trust us”?: Lessons from a volunteer research registry
dc.typeArticle
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