HANDS in Autism

Permanent URI for this collection

https://hdl.handle.net/1805/37288

HANDS in Autism has emerged as a state-wide training and resource center making a significant impact in the lives of individuals with autism spectrum disorder (ASD) and other special needs as well as their families and caregivers. The evidence-based behavioral and educational practices at the core of the HANDS curriculum have had noted feasibility and practicality to providers and other stakeholders across settings (educational, medical/clinical, home/community). In addition, though the focus and expertise of HANDS is well recognized in ASD and related disabilities, consumers also appreciate that the same behavioral and educational principles and practices are relevant and useful to a wide range of individuals across functioning levels and the lifespan.

The mission of HANDS in Autism is to provide unique learning opportunities designed to improve understanding of the process and ability of working with individuals with ASD and a range of other developmental and behavioral challenges through hands-on and coaching experiences and building bridges of information, resources and collaboration across family, educational, medical and community systems.

For more information, please visit https://handsinautism.iupui.edu.

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Now showing 1 - 10 of 71
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    A global perspective: Quantitative changes in training participants’ knowledge of autism across selected settings within the United States and Singapore
    (2023-11) Neal, Tiffany; Nazarloo, Shawn; Deodhar, Aditi; Somasundaram, Manasi; Gandhi, Siddhi; Swiezy, Naomi
    The present study aimed to assess and compare the effectiveness of the HANDS in Autism™ Model training curriculum, framework and process specific to changes in autism knowledge via the Autism Knowledge Survey-Revised (AKS-R; HANDS in Autism®, 2005). Additional exploration using the AKS-R, sought to explore differences in the global, Singapore training cohorts specific to their participation in either single-week or multi-week training formats. Results from this preliminary exploration demonstrated statistically significant improvement in autism knowledge across both countries. These findings provide initial evidence as to both the effectiveness and transportability of the HANDS in Autism® Model across participants and countries. While findings are specific to improved autism knowledge, the emerging potential of the Hands in Autism® Model as a comprehensive treatment model will be further discussed.
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    Analyzing Autism Spectrum Disorder Behaviors Through Evidence-Based Educational Models in School Support Settings
    (2022-05) Boligorla, Srinivasulu; Neal, Tiffany; Deodhar, Aditi; Swiezy, Naomi
    Autism Spectrum Disorder (ASD) often presents with challenging behaviors that require structured, evidence-based educational strategies. This practicum focused on implementing and evaluating the HANDS in Autism® model across three collaborative school sites (Warsaw, Lakeview, and Gateway) to monitor and improve the use of evidence-based practices (EBPs) for managing problem behaviors among students with ASD. Data were collected using REDCap, cleaned and analyzed in R and Excel, and visualized to compare the proportion of students exhibiting problem behaviors across schools and visits. Results suggested variation in behavioral trends across school sites, with Warsaw showing higher proportions of students demonstrating problem behaviors during observed visits. The findings support the value of systematic monitoring and data-driven implementation of EBPs in improving behavioral outcomes and reducing the use of exclusionary discipline in autism support classrooms.
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    Analyzing Behavioral Patterns in Acute Inpatient Psychiatric Settings for Individuals with Autism Spectrum Disorder
    (2023) Bodempudi, Sai Tejaswi; Neal, Tiffany; Deodhar, Aditi; Swiezy, Naomi
    This project focused on analyzing behavioral patterns in patients at the Indiana NeuroDiagnostic Institute (NDI) over a three-year period (2021–2023). Using data from Cerner and REDCap, the study examined the frequency and types of physical and verbal aggression among 100 patients. The analysis identified “Other/Unspecified” as the most commonly reported category for both physical and verbal aggression, suggesting the need for improved classification methods. “Hitting,” “kicking,” “verbal threats,” and “screaming” were also frequent behaviors. Year-to-year variation in certain behaviors, such as an increase in “punching” in 2023, points to changing trends in patient aggression. Recommendations include refining behavior categorization, improving data extraction from Cerner, and developing more targeted intervention strategies to support patient care and staff safety. The project also emphasized the value of ethical research practices, collaborative teamwork, and data accuracy through recurring tasks such as scoring, entry, and validation.
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    Analyzing client denial trends in the NDI dataset: Patterns and predictive insights
    (2024-05) Samala, Vishwasree; Neal, Tiffany; Deodhar, A; Devarapalli, Baby Amulya; Swiezy, Naomi
    This project analyzed denial patterns among clients in the HANDS in Autism® NDI Exploratory dataset. Using REDCap and Cerner data, a structured coding scheme was implemented for consistent data entry and scoring. Python was used to quantitatively analyze denial reasons across 2021–2023. The most frequent denial factors included unmet family/parent criteria and issues unrelated to autism. Statistical testing, including Chi-Square and Fisher’s exact tests, revealed no significant relationship between gender and denial reasons. The project also produced a user guide for REDCap data entry and proposed future directions, including expanding the dataset and improving data completeness through enhanced data collection practices.
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    Analyzing gender distribution of HANDS ECHO participants
    (2024-05) Pancholi, Kushal; Neal, Tiffany; Gottipati, Mounika; Swiezy, Naomi
    The research focuses on the correlation between years of experience and confidence levels, examining knowledge, support, and perceived effectiveness in caring for individuals with ASD. Data collection involved surveys and interviews, with subsequent data entry into Excel and REDCap. Key findings indicate a significant positive correlation between healthcare providers' total years of experience and their confidence in ASD care. The study also highlights the gender distribution among participants, with a notable representation of females and participants from Indiana. These insights aim to inform the development of targeted training programs, enhancing provider readiness and improving care outcomes for individuals with ASD.
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    Analyzing participants demographics, distribution and engagement for the HANDS Developmental Disabilities and/or Autism ECHO tele-mentoring program
    (2024-08) Alluri, Dimple Sushma; Neal, Tiffany; Gottipati, Mounika; Swiezy, Naomi
    This research aimed to analyze participants' demographics, distribution, and engagement for the HANDS Developmental Disabilities and/or Autism ECHO tele-mentoring program. Data was collected through surveys to understand the representation of different participant types, race composition, gender distribution, and geographic distribution. The study also examined the preferred modes of consultation and professional involvement in diagnosing and supporting individuals with developmental disabilities and autism. Key findings indicated that family/caregivers were the most represented participant type, with a predominant race of White or Caucasians and a higher female participation rate. Indiana showed the highest geographic interest. Preferred consultation methods included phone and online consultations, with email consultations being favored by the majority. Professional involvement highlighted the need for increased engagement in early diagnosis and intervention. Workshop preferences leaned towards webinars, with less interest in all-day conferences. Recommendations were made to increase outreach to community providers, expand email consultation topics, diversify workshop offerings, strengthen professional awareness, and leverage geographic interest to develop localized programs.
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    Analyzing self-injurious behaviors (SIB) in individuals with autism spectrum disorder: Trends, interventions, and treatment outcomes
    (2024-08) Viswanath, Adarsh; Neal, Tiffany; Devarapalli, Baby Amulya; Swiezy, Naomi
    This project explored self-injurious behaviors (SIB) in individuals with Autism Spectrum Disorder (ASD) using the NDI Exploratory dataset comprising progress notes for 110 patients. Data was managed via REDCap, analyzed using Python, and visualized through Power BI. The study examined how SIB trends varied over five weeks and their association with gender and age. Findings revealed a significant reduction in behaviors such as hitting oneself, hitting the body against objects, and cutting. Males exhibited higher SIB frequencies overall, with early adolescence, particularly around ages 12 to 16, showing peak incidences. The consistent improvement in weekly recovery scores indicates that tailored interventions are effective. Recommendations include age- and gender-specific strategies, continuous treatment monitoring, and increased caregiver support to enhance outcomes and reduce long-term SIB risk.
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    Analyzing the Trend in Engagement of IIACC Delegates in IIACC Quarterly meetings from June 2023 to June 2024
    (2024-05) Sanjeev, Samantha; Neal, Tiffany; Ogunmola, Botiwuoluwa; Swiezy, Naomi
    The Indiana Interagency Autism Coordinating Council (IIACC) is a collective stakeholder work group with primary mission to “facilitate the efficient and effective exchange of information on autism- related activities among the member agencies, and to leverage resources and experiences to address common issues and outcomes, and to fill identified gaps” (INformation Network, 2022). Established in 2005, the IIACC's work is guided by ongoing evaluations of statewide and regional needs through gap analyses, community input, and national data, with a 27% increase in 2022 compared to the previous period. Trend in IIACC engagement of IIACC meetings of 250 stakeholders were analyzed. Community Providers formed the largest group at 58.4% (146 individuals), followed by Family Members/Caregivers at 18.4% (46), Medical Providers at 11.2% (28), School Personnel at 6.4% (16), and Others at 5.6% (14). While June 2023, December 2023, and June 2024 saw relatively consistent attendance with 24, 22, and 19 participants respectively, March 2024 experienced a dramatic surge with 185 attendees. The analysis of IIACC meeting participation from June 2023 to June 2024 reveals consistent engagement which underscore the importance of the INformation Network in disseminating relevant information and engaging stakeholders. These insights can inform future strategies to enhance engagement and ensure the council's activities effectively meet the needs of its diverse stakeholders.
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    Assessing Behavioral Outcomes in Youth with Autism Following Evidence-Based Interventions
    (2022-12) Navudu, Sai Pooja; Neal, Tiffany; Deodhar, Aditi; Swiezy, Naomi
    This practicum, completed at HANDS in Autism® in collaboration with the Indiana NeuroDiagnostic Institute (NDI), focused on evaluating the behavioral outcomes of individuals with Autism Spectrum Disorder (ASD) receiving psychiatric services. The project involved systematic data collection from the Cerner patient portal, followed by data harmonization in Microsoft Excel and coding using REDCap. Psychiatric and behavioral factors were coded to identify patterns and changes in behavior across treatment episodes. The goal was to assess the effectiveness of autism-related services and interventions provided within the inpatient setting. Results from this exploratory analysis will inform potential modifications to HANDS training modules and curricula to better align with client needs and improve long-term care outcomes for individuals with ASD. The practicum also provided practical training in data analysis, coding, and interpretation of real-world clinical data.
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    Assessing Caregiver and Provider Knowledge Gaps in Autism Spectrum Disorder Using the Autism Knowledge Survey
    (2023-04-24) Simhadri, Suguna; Neal, Tiffany; Swiezy, Naomi
    Autism Spectrum Disorder (ASD) is often misunderstood, leading to delays in diagnosis, intervention, and support. The Autism Knowledge Survey (AKS) was developed to identify knowledge gaps and barriers to shared understanding among caregivers, educators, and providers. During this practicum at HANDS in Autism®, the student focused on reviewing and preparing data from the second iteration of the AKS (AKS2), integrating it with AKS1 to support manuscript development and future journal submission. Tasks included manuscript review, dataset refinement, and statistical analysis using REDCap, R, and Microsoft Excel. Results from AKS2 will inform targeted ASD education efforts and improve stakeholder understanding of core diagnostic and intervention principles. The practicum reinforced the importance of data-informed dissemination in reducing stigma and guiding community-based training and outreach for ASD.