Browsing by Subject "families"

Now showing 1 - 9 of 9
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    Connecting Care – Empowering The Patient Through Their Waiting Experience
    (Office of the Vice Chancellor for Research, 2016-04-08) Sieferd, Edward J.; Hsu, Hsueh-Fen; Semidey, Lisa; Mohebbi, Mahdiyeh; Rong, Jiacheng; Chen, Linjun; Phillips, Milesha; Stevens, Madison; Jin, Siying; Hong, Youngbok
    Waiting at a hospital is a challenge for patients and their families. Many individuals go to the hospital, waiting for hours to receive their tests and results. This waiting experience places a burden on individuals and causes stress in a tense time in their lives. This research was a partnership between healthcare providers and graduate program of Design Thinking and Leadership, Department of Visual Communication Design, Herron School of Art and Design. The goal of this people-centered research was to examine and enhance the patient waiting experience at the Registration, Lab and Radiology service areas of a Carmel Hospital. To understand the patient experiences, we approached the project utilizing people-centered design methods. The design research team conducted ethnographic observations and interviews involving patients and staff within the Laboratory, Registration, and Radiology spaces at a hospital. In responding to defined problems within these spaces, the design team identified the desirable patient communication flow and developed an integrative communication system that aligned with the touch points of the patient journey. This communication system included wrist bands, digital message boards, an expanded pager system, as well as redesigned interior spaces. The two major findings from the research were: One, current communication levels between provider staff and patients resulted in negative patient perceptions of the service. Two, patients wanted more integrated ways to maintain communication between service providers and themselves. From these findings, it was recommended that service providers adapt a more integrated communication system to deliver an optimal patient experience.
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    Family resistance as a tool in urban school reform
    (Teachers College Press, 2014-08) Santamaría Graff, Cristina
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    Pandemic influenza planning: a guide for individuals and families. [Part 1]
    (2006-05) United States. Department of Health and Human Services.
    Guidelines for Americans to prepare for an outbreak of pandemic influenza. Part 1 contains section "Pandemic Influenza -- Get Informed. Be Prepared." Part 2 contains section "Pandemic Influenza -- Challenges and Preparation". Part 3 contains section "Pandemic Influenza -- Prevention and Treatment". Part 4 contains section "Questions and Answers". Part 5 contains sections "Pandemic Flu Planning Checklist for Individuals & Families", "Family Emergency Health Information Sheet", and "For More Information".
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    Pandemic influenza planning: a guide for individuals and families. [Part 2]
    (2006-05) United States. Department of Health and Human Services.
    Guidelines for Americans to prepare for an outbreak of pandemic influenza. Part 1 contains section "Pandemic Influenza -- Get Informed. Be Prepared." Part 2 contains section "Pandemic Influenza -- Challenges and Preparation". Part 3 contains section "Pandemic Influenza -- Prevention and Treatment". Part 4 contains section "Questions and Answers". Part 5 contains sections "Pandemic Flu Planning Checklist for Individuals & Families", "Family Emergency Health Information Sheet", and "For More Information".
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    Pandemic influenza planning: a guide for individuals and families. [Part 3]
    (2006-05) United States. Department of Health and Human Services.
    Guidelines for Americans to prepare for an outbreak of pandemic influenza. Part 1 contains section "Pandemic Influenza -- Get Informed. Be Prepared." Part 2 contains section "Pandemic Influenza -- Challenges and Preparation". Part 3 contains section "Pandemic Influenza -- Prevention and Treatment". Part 4 contains section "Questions and Answers". Part 5 contains sections "Pandemic Flu Planning Checklist for Individuals & Families", "Family Emergency Health Information Sheet", and "For More Information".
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    Pandemic influenza planning: a guide for individuals and families. [Part 4]
    (2006-05) United States. Department of Health and Human Services.
    Guidelines for Americans to prepare for an outbreak of pandemic influenza. Part 1 contains section "Pandemic Influenza -- Get Informed. Be Prepared." Part 2 contains section "Pandemic Influenza -- Challenges and Preparation". Part 3 contains section "Pandemic Influenza -- Prevention and Treatment". Part 4 contains section "Questions and Answers". Part 5 contains sections "Pandemic Flu Planning Checklist for Individuals & Families", "Family Emergency Health Information Sheet", and "For More Information".
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    Pandemic influenza planning: a guide for individuals and families. [Part 5]
    (2006-05) United States. Department of Health and Human Services.
    Guidelines for Americans to prepare for an outbreak of pandemic influenza. Part 1 contains section "Pandemic Influenza -- Get Informed. Be Prepared." Part 2 contains section "Pandemic Influenza -- Challenges and Preparation". Part 3 contains section "Pandemic Influenza -- Prevention and Treatment". Part 4 contains section "Questions and Answers". Part 5 contains sections "Pandemic Flu Planning Checklist for Individuals & Families", "Family Emergency Health Information Sheet", and "For More Information".
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    Practical Strategies and Advice for Managing Ethical Concerns in End-of-Life Research
    (Office of the Vice Chancellor for Research, 2011-04-08) Hickman, Susan; Cartwright, Juliana; Nelson, Christine; Knafl, Kathryn; Bankowski, Susan
    Problem/Issue Statement A growing national interest in improving end-of-life care has increased the amount of research involving dying patients and their families. However, questions about how to best balance the pressing need for research with protecting participants trouble both investigators and institutional review boards (IRBs). Furthermore, ethical concerns were identified as a potential barrier to advancing end-of-life science at the 2004 NIH State of the Science Consensus Conference. This NIH-funded study describes ethical concerns and practical strategies for managing ethical challenges in the conduct of end-of-life research. Description of Research Methods: A qualitative, exploratory case study design followed the development of end-of-life research from proposal generation through the review process. Inclusion criteria mirrored those used in the NIH State of the Science Report. Cases were identified through a search of active studies in the NIH RePORT database and an internet search of active research funded by private foundations and institutions. Data were collected from a purposive sample of 34 principal investigators who participated by phone in semistructured interviews and provided document data regarding their experiences with the grant and IRB review processes. Interviews were recorded and transcribed with identifying information removed to protect confidentiality. Relevant document data were extracted and de-identified. Data were analyzed using exploratory qualitative case study methods. Results: The most common ethical concerns about research with end-of-life populations were recruitment strategies, the burden of study procedures, and population vulnerability. Strategies to address these concerns included gathering data about the benefits of research participation, consulting with the IRB and with more experienced researchers, using non-threatening language in the consent and other materials, being flexible in data collection protocols to accommodate participant limitations, creating back-up plans in the event of crisis, partnering with clinicians to ensure prompt attention to symptom reports, and addressing the training and emotional needs of research staff . PIs advise IRBs to seek out expert consultants for end-of-life studies, work collaboratively with investigators, simplify the consent process, and be open to the benefits of research participation for dying patients and their families rather than assuming harm will occur. Conclusion: Investigators use a variety of strategies to manage ethical issues in the conduct of end-oflife research. They advise IRBs to seek out expertise, enhance knowledge of the population, and work collaboratively with investigators. Future research will focus on gathering systematic data regarding the experiences of dying patients and their families with end-of-life research.
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    Resistance and Resilience as Resource: Families’ Participation in Urban School Reform
    (Teachers College Press, 2014) Santamaría Graff, Cristina C.
    This comprehensive book is grounded in the authentic experiences of educators who have done, and continue to do, the messy everyday work of transformative school reform. The work of these contributors, in conjunction with research done under the aegis of the National Institute of Urban School Improvement (NIUSI), demonstrates how schools and classrooms can move from a deficit model to a culturally responsive model that works for all learners. To strengthen relationships between research and practice, chapters are coauthored by a practitioner/researcher team and include a case study of an authentic urban reform situation. This volume will help practitioners, reformers, and researchers make use of emerging knowledge and culturally responsive pedagogy to implement reforms that are more congruent with the strengths and needs of urban education contexts.