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Item Advocacy in Mental Health Social Interactions on Public Social Media(2022-02) Cornet, Victor P.; Holden, Richard J.; Bolchini, Davide; Brady, Erin; Mohler, George; Hong, Michin; Lee, SangwonHealth advocacy is a social phenomenon in which individuals and collectives attempt to raise awareness and change opinions and policies about health-related causes. Mental health advocacy is health advocacy to advance treatment, rights, and recognition of people living with a mental health condition. The Internet is reshaping how mental health advocacy is performed on a global scale, by facilitating and broadening the reach of advocacy activities, but also giving more room for opposing mental health advocacy. Another factor contributing to mental health advocacy lies in the cultural underpinnings of mental health in different societies; East Asian countries like South Korea have higher stigma attached to mental health compared to Western countries like the US. This study examines interactions about schizophrenia, a specific mental health diagnosis, on public social media (Facebook, Instagram, and Twitter) in two different languages, English and Korean, to determine how mental health advocacy and its opposition are expressed on social media. After delineation of a set of keywords for retrieval of content about schizophrenia, three months’ worth of social media posts were collected; a subset of these posts was then analyzed qualitatively using constant comparing with a proposed model describing online mental heath advocacy based on existing literature. Various expressions of light mental health advocacy, such as sharing facts about schizophrenia, and strong advocacy, showcasing offline engagement, were found in English posts; many of these expressions were however absent from the analyzed Korean posts that heavily featured jokes, insults, and criticisms. These findings were used to train machine learning classifiers to detect advocacy and counter-advocacy. The classifiers confirmed the predominance of counter-advocacy in Korean posts compared to important advocacy prevalence in English posts. These findings informed culturally sensitive recommendations for social media uses by mental health advocates and implications for international social media studies in human-computer interaction.Item Autism Spectrum Disorders: Wading through the controversies on the web(Taylor & Francis, 2009) Coates, Heather L.Autism is one of three developmental disorders in the group known as the autism spectrum disorders (ASDs). This spectrum of disorders has an estimated prevalence of one in 150 children. Increased awareness and diagnosis has led to an explosion of information available about the disorder. This explosion has made scientific research more readily available, along with inaccurate and spurious information. Autism is a disorder without a known cause or cure and few treatments with sufficient evidence to indicate effectiveness. Due to the variable presentation of autism, there is no single intervention that is effective for all individuals. The complexity of the disorder is addressed by research and practice across several disciplines, including education, psychology, psychiatry, neurology, genetics, and internal medicine. This resource guide will introduce the range of autism spectrum disorders, its various perspectives and treatments, and will point librarians and patrons to introductory resources to provide links for further learning.Item Automatic Export of PubMed Citations to EndNote(http://www.tandfonline.com/doi/full/10.1080/02763861003723317#.UnARCCQ2-CY, 2010-04) London, Sue; Gurdal, Osman; Gall, CaroleThe export of MEDLINE references to EndNote can be accomplished in various ways. Unlike Ovid MEDLINE, PubMed does not have a direct export feature to EndNote. Until recently, PubMed references had to be saved as a text file to import into EndNote. Now, the automatic export of PubMed references can be done using Internet Explorer (IE) or Mozilla Firefox Web browsers. The development and teaching of seamless citation management is a value-added service to health professionals.Item Development, Implementation, and Effectiveness of a Self-sustaining, Web-Based LGBTQ+ National Platform: A Framework for Centralizing Local Health Care Resources and Culturally Competent Providers(JMIR Publications, 2021-09-22) Nowaskie, Dustin Z.; Psychiatry, School of MedicineBackground: The lesbian, gay, bisexual, transgender, queer, and other sexual and gender minority (LGBTQ+) population has long faced substantial marginalization, discrimination, and health care disparities compared to the cisgender, heterosexual population. As the etiology of such disparities is multifaceted, finding concrete solutions for LGBTQ+ health care equity is challenging. However, the internet may offer the space to initiate an effective model. Objective: In an effort to make LGBTQ+ public resources and culturally competent providers transparent, modernize medical education, and promote cultural competency, OutCare Health-a nonprofit 501(c)(3) multidisciplinary, multicenter web-based platform-was created. Methods: The organization employs a cyclic, multidimensional framework to conduct needs assessments, identify resources and providers, promote these efforts on the website, and educate the next generation of providers. LGBTQ+ public health services are identified via the internet, email, and word of mouth and added to the Public Resource Database; culturally competent providers are recruited to the OutList directory via listservs, medical institutions, local organizations, and word of mouth; and mentors are invited to the Mentorship Program by emailing OutList providers. These efforts are replicated across nearly 30 states in the United States. Results: The organization has identified over 500 public health organizations across all states, recognized more than 2000 OutList providers across all states and 50 specialties, distributed hundreds of thousands of educational materials, received over 10,000 monthly website visits (with 83% unique viewership), and formed nearly 30 state-specific teams. The total number of OutList providers and monthly website views has doubled every 12-18 months. The majority of OutList providers are trained in primary, first point-of-care specialties such as family medicine, infectious disease, internal medicine, mental health, obstetrics and gynecology, and pediatrics. Conclusions: A web-based LGBTQ+ platform is a feasible, effective model to identify public health resources, culturally competent providers, and mentors as well as provide cultural competency educational materials and education across the country. Such a platform also has the opportunity to reach self-perpetuating sustainability. The cyclic, multidisciplinary, multidimensional, multicenter framework presented here appears to be pivotal in achieving such growth and stability. Other organizations and medical institutions should heavily consider using this framework to reach their own communities with high-quality, culturally competent care for the LGBTQ+ population.Item EXPLORING HEALTH WEBSITE USERS BY WEB MINING(Universal Access in Human-Computer Interaction. Applications and Services Lecture Notes in Computer Science, 2011, Volume 6768/2011, 376-383, DOI: 10.1007/978-3-642-21657-2_40, 2011-07) Kong, Wei; Jones, Josette F.; Mahoui, Malika; Kharrazi, HadiWith the continuous growth of health information on the Internet, providing user-orientated health service online has become a great challenge to health providers. Understanding the information needs of the users is the first step to providing tailored health service. The purpose of this study is to examine the navigation behavior of different user groups by extracting their search terms and to make some suggestions to reconstruct a website for more customized Web service. This study analyzed five months’ of daily access weblog files from one local health provider’s website, discovered the most popular general topics and health related topics, and compared the information search strategies for both patient/consumer and doctor groups. Our findings show that users are not searching health information as much as was thought. The top two health topics which patients are concerned about are children’s health and occupational health. Another topic that both user groups are interested in is medical records. Also, patients and doctors have different search strategies when looking for information on this website. Patients get back to the previous page more often, while doctors usually go to the final page directly and then leave the page without coming back. As a result, some suggestions to redesign and improve the website are discussed; a more intuitive portal and more customized links for both user groups are suggested.Item Human rights challenges of IT-led democratization(2013-08-13) Caparas, Perfecto "Boyet"Item Perceptions on Oral Ulcers From Facebook Page Categories: Observational Study(JMIR, 2023-01) Simhadri, Suguna; Yalamanchi, Sriha; Stone, Sean; Srinivasan, Mythily; Oral Pathology, Medicine and Radiology, School of DentistryBackground: Oral ulcers are a common condition affecting a considerable proportion of the population, and they are often associated with trauma and stress. They are very painful, and interfere with eating. As they are usually considered an annoyance, people may turn to social media for potential management options. Facebook is one of the most commonly accessed social media platforms and is the primary source of news information, including health information, for a significant percentage of American adults. Given the increasing importance of social media as a source of health information, potential remedies, and prevention strategies, it is essential to understand the type and quality of information available on Facebook regarding oral ulcers. Objective: The goal of our study was to evaluate information on recurrent oral ulcers that can be accessed via the most popular social media network—Facebook. Methods: We performed a keyword search of Facebook pages on 2 consecutive days in March 2022, using duplicate, newly created accounts, and then anonymized all posts. The collected pages were filtered, using predefined criteria to include only English-language pages wherein oral ulcer information was posted by the general public and to exclude pages created by professional dentists, associated professionals, organizations, and academic researchers. The selected pages were then screened for page origin and Facebook categories. Results: Our initial keyword search yielded 517 pages; interestingly however, only 112 (22%) of pages had information relevant to oral ulcers, and 405 (78%) had irrelevant information, with ulcers being mentioned in relation to other parts of the human body. Excluding professional pages and pages without relevant posts resulted in 30 pages, of which 9 (30%) were categorized as “health/beauty” pages or as “product/service” pages, 3 (10%) were categorized as “medical & health” pages, and 5 (17%) were categorized as “community” pages. Majority of the pages (22/30, 73%) originated from 6 countries; most originated from the United States (7 pages), followed by India (6 pages). There was little information on oral ulcer prevention, long-term treatment, and complications. Conclusions: Facebook, in oral ulcer information dissemination, appears to be primarily used as an adjunct to business enterprises for marketing or for enhancing access to a product. Consequently, it was unsurprising that there was little information on oral ulcer prevention, long-term treatment, and complications. Although we made efforts to identify and select Facebook pages related to oral ulcers, we did not manually verify the authenticity or accuracy of the pages included in our analysis, potentially limiting the reliability of our findings or resulting in bias toward specific products or services. Although this work forms something of a pilot project, we plan to expand the project to encompass text mining for content analysis and include multiple social media platforms in the future.Item A Post-development Perspective on mHealth -- An Implementation Initiative in Malawi(IEEE, 2013-03-18) Purkayastha, Saptarshi; Manda, Tiwonge Davis; Sanner, Terje AkselWhile the sheer number of mHealth implementations around the world have been increasing dramatically, authoritative voices on global health have tried to put the focus on quantifiable evaluations and comparisons of these projects (e.g. health outcomes, cost savings, efficiency) in order to channel donor funds and investments into proven and scalable solutions. Drawing on empirical data from an mHealth implementation in Malawi we argue that quantitative evaluation of health interventions often assumes a top-down and limited view on the developmental impact of mHealth. Through our action-research involvement with facility-based reporting of routine health data through mobile phones, we conclude that developmental impacts of mHealth are local and each locale experience a different developmental impact depending on the context of use and available resources. The paper contrasts global concerns for quantifiable development with local priorities with respect to mHealth projects and information system (IS) interventions in health more broadly.Item Privacy Protection and Mobility Enhancement in Internet(2019-05) Zhang, Ping; Durresi, Arjan; Zou, Xukai; Raje, Rajeev R.; Liang, YaoThe Internet has substantially embraced mobility since last decade. Cellular data network carries majority of Internet mobile access traffic and become the de facto solution of accessing Internet in mobile fashion, while many clean-slate Internet mobility solutions were proposed but none of them has been largely deployed. Internet mobile users increasingly concern more about their privacy as both researches and real-world incidents show leaking of communication and location privacy could lead to serious consequences. Just the communication itself between mobile user and their peer users or websites could leak considerable privacy of mobile user, such as location history, to other parties. Additionally, comparing to ordinary Internet access, connecting through cellular network yet provides equivalent connection stability or longevity. In this research we proposed a novelty paradigm that leverages concurrent far-side proxies to maximize network location privacy protection and minimize interruption and performance penalty brought by mobility.To avoid the deployment feasibility hurdle we also investigated the root causes impeding popularity of existing Internet mobility proposals and proposed guidelines on how to create an economical feasible solution for this goal. Based on these findings we designed a mobility support system offered as a value-added service by mobility service providers and built on elastic infrastructure that leverages various cloud aided designs, to satisfy economic feasibility and explore the architectural trade-offs among service QoS, economic viability, security and privacy.Item Reducing handoff latency in proxy mobile IPv6(2014-05-21) Vojini, Sumith Dev; Dongsoo, Stephen Kim; King, Brian; Salama, PaulMobile IP though allows mobility features to a node it suffers from signaling Latencies which are mainly incurred due to the fact that the MN itself is involved in the handover process. To overcome this problem proxy mobile IPv6(PMIPv6) was defined where the mobility signaling is taken care of by a proxy server while keeping track of the MN's movement. PMIPv6 has considerably reduced the handover latency but the demand for real time applications over the network has increased tremendously due to recent explosion of the cloud era. My thesis focuses on increasing the L3 handoff signaling efficiency by reducing the latency. This is achieved by our idea to do both the AAA authentication as well as the LMA registration in PMIPv6 at the same time. The simulation results show that our proposed approach perform better than the current PMIPv6 L3 handover signaling reducing the latency as well as packet loss.