Assessing Regional and Stakeholder Needs for Autism Spectrum Disorder Services in Indiana

Abstract

Autism Spectrum Disorder (ASD) is the most prevalent developmental disorder in the United States, with increasing demand for services across regions. Despite this rise in prevalence, access to timely, evidence-based, and affordable services remains inconsistent, particularly across rural areas. This study aimed to assess the perceived needs, barriers, and service gaps among key stakeholders across Indiana. A statewide Needs Assessment Survey, led by the HANDS in Autism® Interdisciplinary Training and Resource Center (2014–2015), collected responses from caregivers, educators, medical providers, community-based professionals, and individuals with ASD. Findings highlighted a lack of service providers, especially in rural communities, and inadequate funding as the top barriers. While each stakeholder group identified distinct priorities, the data revealed many shared challenges and goals. Results will be used to inform policy recommendations, support the development of the Indiana State Autism Plan, and guide future programming through the Indiana Interagency Autism Coordinating Council (IIACC). These findings underscore the need for cross-sector collaboration and regional customization in autism service planning.