Bridging the Gaps: Family Perspectives on Accessing Services for Individuals with Autism Spectrum Disorder

Abstract

This project explored the challenges families face in navigating services for individuals with Autism Spectrum Disorder (ASD) by analyzing qualitative data from structured interviews with caregivers and professionals. As a student volunteer research assistant at HANDS in Autism, the intern supported data coding and curriculum development for the ECHO project—an initiative designed to foster collaborative learning through educational modules, micro-credentials, and digital badges. Despite limitations in sample size, preliminary findings identified recurring themes in preferred support sources and unmet service needs. The experience enhanced the intern’s understanding of research design, data management, and cross-functional teamwork in the context of developmental and behavioral health. This foundational work guides future studies aimed at developing targeted tools and resources to support better families navigating complex autism service systems.