Driving Systemic Change in Autism Spectrum Disorder Services Through Statewide Planning, Gap Analysis, and Stakeholder Collaboration

Abstract

Autism Spectrum Disorder (ASD) continues to grow in prevalence, creating an urgent need for coordinated, high-quality, and culturally responsive services across systems. In Indiana, the HANDS in Autism® Interdisciplinary Training and Resource Center was selected to lead facilitation of the Indiana Interagency Autism Coordinating Council (IIACC) and implementation of the Indiana Comprehensive State Plan for Autism Services. Using evidence-based models such as the Collective Impact Model and implementation science frameworks (e.g., NIRN, START), HANDS conducted statewide gap analyses and built regional implementation teams to assess service needs, guide stakeholder collaboration, and develop strategic goals. Findings emphasized disparities in service access across urban, rural, and mixed regions, limited cultural representation, and a need for shared resource navigation. Progress to date includes increased stakeholder engagement, actionable state-level recommendations, and cross-system alignment focused on improving outcomes and quality of life for individuals with ASD and their families. The framework highlights an iterative, data-driven process for systemic change, applicable across broader ID/DD services.