Assessing Caregiver and Provider Knowledge Gaps in Autism Spectrum Disorder Using the Autism Knowledge Survey

Abstract

Autism Spectrum Disorder (ASD) is often misunderstood, leading to delays in diagnosis, intervention, and support. The Autism Knowledge Survey (AKS) was developed to identify knowledge gaps and barriers to shared understanding among caregivers, educators, and providers. During this practicum at HANDS in Autism®, the student focused on reviewing and preparing data from the second iteration of the AKS (AKS2), integrating it with AKS1 to support manuscript development and future journal submission. Tasks included manuscript review, dataset refinement, and statistical analysis using REDCap, R, and Microsoft Excel. Results from AKS2 will inform targeted ASD education efforts and improve stakeholder understanding of core diagnostic and intervention principles. The practicum reinforced the importance of data-informed dissemination in reducing stigma and guiding community-based training and outreach for ASD.