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Item BE YOUR OWN BOSS: A CHRONIC DISEASE SELF-MANAGEMENT PROGRAM(Office of the Vice Chancellor for Research, 2012-04-13) Gladstone, Erin B.; Bhargava, Aakriti; Ciccarelli, Mary R.Objective: Describe the pilot of a peer-led chronic disease self-management workshop for youth aged 13-24 years old. Background: Fifteen to eighteen percent of children in the United States live with a chronic health condition (Perrin et al., Journal of the American Medical Association 2007, 297:2755). The Stanford chronic disease self-management program (CDSMP) has demonstrated improved self-care and health outcomes in older adults. Alberta Health Services has adapted this program from Stanford University for youth and young adults. CYACC is col-laborating with Alberta to evaluate the effectiveness of the adapted version in adolescents and young adults. Methods: Train the trainer sessions were completed to develop an initial cadre of lay leaders to implement the workshop sessions. Participants with any chronic condition attend 2 hour peer-led sessions once per week for six weeks. During the sessions, individuals with a variety of chronic diseases learn the skills needed in self-management of their condition and mainte-nance of general well-being and life’s activities. Data is collected on self-efficacy, pain, adherence, and other outcomes through pre- and post- as-sessment surveys. Results: Fourteen individuals participated in the pilot phase of the pro-gram; 5 in Lafayette, IN and 8 in Indianapolis, IN. A total of 14 pre-surveys were collected, while 10 post-surveys were collected. Analyses of the sur-veys show beneficial topics , while also indicating which topics should receive additional focus. Areas of the program identified as needing attention include recruitment, risk management, transportation issues, participant dropout rates, logistics of workshops, continued training of lay leaders, and stand-ardization of survey responses. Conclusion: The pilot study identified the importance and need for a self-management program for youth and young adults with chronic conditions. This program has the potential to improve health and self-management in the study population. Limitations of the program were addressed and will be improved for the next round of workshops.Item Center for Pediatric Obesity and Diabetes Prevention Research(Office of the Vice Chancellor for Research, 2015-04-17) Hannon, Tamara S.; Smith, Lisa G.; Carroll, Aaron E.; Marrero, David G.Background To facilitate both research and treatment of obesity in youth who are at especially high risk for diabetes, we have created the Center for Pediatric Obesity and Diabetes Prevention Research. The mission of the center is to advance the health of vulnerable populations through obesity and diabetes prevention research focusing on mechanisms of progression from obesity to type 2 diabetes, defining best practices for obesity/diabetes prevention among youth, and cost-effective translation of the research to the community. Specific Aims 1. To promote the clinical investigation of pathophysiologic mechanisms, diagnosis, and primary prevention of type 2 diabetes among vulnerable youth 2. Foster collaboration and facilitate interdisciplinary research between investigators interested in childhood obesity and diabetes prevention 3. Participate in community-based diabetes prevention research Key Ongoing Collaborative Research Projects Youth Diabetes Prevention Clinic (YDPC) – Patient-Centered Outcomes Project This program is designed to evaluate and assess the needs of adolescents (ages 10 – 21) who have evidence of prediabetes. Our goal is to successfully intervene in the trajectory toward the development of diabetes, and to promote healthy weight-control and improved well-being through an individualized treatment plan. Not only has this allowed us to address a significant unmet clinical need, but also to advance pediatric obesity patient-centered outcomes research and comparative effectiveness research in adolescent obesity / diabetes prevention. Dietary Intervention for Glucose Intolerance in Teens (DIG-IT Study) The objective of this study is to determine the impact on glycemic control, in adolescents who have prediabetes, of an individually-tailored wellness coaching strategy used to modify lifestyle habits. Additionally, the study aims to identify lifestyle factors that drive glycemic control, independent of changes in weight. We are conducting this study in in the Youth Diabetes Prevention Clinic via a collaboration with Dr. Gletsu-Miller (Purdue University). ENCOURAGE Healthy Families Study This is a randomized trial evaluating the comparative effectiveness and costs of an adaptation of the Diabetes Prevention Program (DPP) directed at mothers and their children. The intervention is a group based lifestyle program which we developed and implemented in partnership with the YMCA. We are comparing the ENCOURAGE intervention targeted to 1) mothers who have had gestational diabetes or prediabetes, and 2) mothers who have had GDM or prediabetes along with their school-aged children.Item Cultivating Civic Generosity in Elementary Youth Across Glocal Cultures, Ecologies, and Generations(IGI Global, 2018) Liu, Laura B.This research explores cultivation of civic generosity in elementary youth as a cultural, ecological, generational practice developing global-local connections and enhanced by arts-based pedagogies, including reading, creating, and sharing children's books. In this study, 2nd grade students across two public school contexts (rural middle-income and rural low-income) reflect on learning generosity from a grandparent/parent to create a children's book presented in a public library. This study draws upon perspectives of participating elementary school teachers, administrators, and librarians to understand how the curricula and their partnerships enhanced student understanding, appreciation, and expression of generosity as a glocal civic practice.Item Emerging Adult Religiosity and Spirituality: Linking Beliefs, Values, and Ethical Decision-Making(MDPI, 2018) Herzog, Patricia Snell; Beadle, De Andre’ T.; Lilly Family School of PhilanthropyThis paper challenges the “spiritual but not religious” (SBNR) category as a methodological artifact caused by interacting two closed-ended survey items into binary combinations. Employing a theoretically rich approach, this study maps the multiple ways in which the religious and the spiritual combine for emerging adults. Results indicate that most emerging adults have a tacit sense of morality, displaying limited cognitive access to how moral reasoning relates to religious and spiritual orientations. This longitudinal study investigates efforts to raise moral awareness through: exposure to diverse religious and spiritual orientations, personal reflection, and collective discussion. Relative to control groups, emerging adults in this study display increases in moral awareness. We combine the results of these studies to formulate a theoretical framework for the ways in which beliefs, values, and ethical decision-making connect in expressing plural combinations of religiosity and spirituality. The implication is that direct attention to religiosity and spirituality — not avoidance of — appears to facilitate ethical decision-making.Item Ethical Approaches to Vaccine Allocation and Administration in Carceral Settings, With a Focus on Youth(Mary Ann Liebert, Inc., 2022-10) Enujioke, Sharon C.; Knopf, Amelia S.; Aalsma, Matthew C.; School of NursingCOVID-19 has disproportionately impacted Americans in carceral settings and secure facilities. A disproportionate number of persons who are confined to carceral settings and secure facilities are members of racial, ethnic, and socioeconomic groups who experience a significant burden of COVID-19 morbidity and mortality. The pandemic-related disparities experienced by minoritized and detained adult populations have received national attention, but the burden of COVID-19 risk among justice-involved youth has been largely absent from these national conversations. With more than 40,000 youth in carceral settings, their COVID-19 risks and prevention needs warrant specific consideration, especially as vaccine distribution programs expand. Youth have been assigned a lower priority status in most state vaccine allocation plans, but youth in carceral settings are at increased risk compared with their peers, raising important questions about how to ethically allocate and administer vaccines to them. In this article we examine ethical issues that arise in the health care of minors in carceral settings and identify an ethical model that could be used to reconsider the allocation of COVID-19 vaccines.Item Examining the Protective Effect of Ethnic Identity on Drug Attitudes and Use Among a Diverse Youth Population(Springer, 2017-08) Zapolski, Tamika C. B.; Fisher, Sycarah; Banks, Devin E.; Hensel, Devon J.; Barnes-Najor, Jessica; Department of Psychology, School of ScienceEthnic identity is an important buffer against drug use among minority youth. However, limited work has examined pathways through which ethnic identity mitigates risk. School-aged youth (N = 34,708; 52 % female) of diverse backgrounds (i.e., African American (n = 5333), Asian (n = 392), Hispanic (n = 662), Multiracial (n = 2129), Native American (n = 474), and White (n = 25718) in grades 4–12 provided data on ethnic identity, drug attitudes, and drug use. After controlling for gender and grade, higher ethnic identity was associated with lower past month drug use for African American, Hispanic, and Multiracial youth. Conversely, high ethnic identity was associated with increased risk for White youth. An indirect pathway between ethnic identity, drug attitudes, and drug use was also found for African American, Hispanic, and Asian youth. Among White youth the path model was also significant, but in the opposite direction. These findings confirm the importance of ethnic identity for most minority youth. Further research is needed to better understand the association between ethnic identity and drug use for Multiracial and Hispanic youth, best ways to facilitate healthy ethnic identity development for minority youth, and how to moderate the risk of identity development for White youth.Item Indiana Philanthropy Alliance: Youth Council Alumni Survey(Lilly Family School of Philanthropy, 2021-10-21) Hauser, Lucy; Herzog, Patricia SnellThis report summarizes Indiana youth council alumni data from the Indiana Philanthropy Alliance, in partnership with the Indiana University Lilly Family School of Philanthropy. Data were collected between 2014 and 2021, and the initial survey was completed during high school prior to youth participation in a youth council. The survey was longitudinal and collected data annually for the five years after youth graduated from the program. Youth participants were 18-23 years of age during the alumni survey data. Results indicate that participating in councils exposes youth to a range of philanthropic activities, resulting in initial increases in several forms of philanthropic activities. Council participation appears to increase donor participation rates above and beyond initial self-selection. Specifically, youth participants donated below the national average initially (-3%), but increased over time to above the national average (+18%). As youth are busier with college and launching careers, philanthropic participation across diverse and time-intensive forms of philanthropy appears to decline. However, activity becomes more concentrated in donating money, suggesting that youth council participation in formative development years establishes a commitment to philanthropy.Item "It all seems so unfair”: Pain-related injustice appraisals in youth with chronic pain and their caregivers(International Association for the Study of Pain, 2020-10) Logan, Deirdre E.; Jordan, Abbie L.; Pediatrics, School of MedicineItem Materials and methods for recruiting systematically marginalized youth and families for weight-management intervention trials: Community stakeholders' perspectives(Lippincott, 2023-01-02) Hardin, Heather K.; Bender, Anna E.; Killion, Cheryl M.; Moore, Shirley M.Rates of overweight and obesity are problematic among systematically marginalized youth; however, these youth and their families are a hard-to-reach research population. The purpose of our study was to identify facilitators and barriers for recruiting systematically marginalized families in youth weight-management intervention research. This study built upon existing evidence through involvement of youth, parents, community agency workers, and school nurses, and an exploration of both recruitment materials and processes. Seven focus groups were conducted with 48 participants from 4 stakeholder groups (youth, parents, school nurses, and community agency workers). A codebook approach to thematic analysis was used to identify key facilitator and barrier themes related to recruitment materials and processes across the stakeholder groups. Ecological systems theory was applied to contextualize the facilitators and barriers identified. Participants reported the need to actively recruit youth in the study through engaging, fun recruitment materials and processes. Participants reported greater interest in recruitment at community-based events, as compared to recruitment through health care providers, underscoring the depth of distrust that this sample group has for the health care system. Recommendations for recruitment materials and processes for weight-management intervention research with systematically marginalized families are proposed.Item Multidimensional Perspectives on the Faith and Giving of Youth and Emerging Adults(MDPI, 2017) Herzog, Patricia Snell; Lilly Family School of Philanthropy