Browsing by Subject "research design"

Now showing 1 - 5 of 5
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    Codesigned Shared Decision-Making Diabetes Management Plan Tool for Adolescents With Type 1 Diabetes Mellitus and Their Parents: Prototype Development and Pilot Test
    (JMIR, 2018-04) Hannon, Tamara S.; Moore, Courtney M.; Cheng, Erika R.; Lynch, Dustin O.; Yazel-Smith, Lisa G.; Claxton, Gina E. M.; Carroll, Aaron E.; Wiehe, Sarah E.; Pediatrics, School of Medicine
    Background: Adolescents with type 1 diabetes mellitus have difficulty achieving optimal glycemic control, partly due to competing priorities that interfere with diabetes self-care. Often, significant diabetes-related family conflict occurs, and adolescents’ thoughts and feelings about diabetes management may be disregarded. Patient-centered diabetes outcomes may be better when adolescents feel engaged in the decision-making process. Objective: The objective of our study was to codesign a clinic intervention using shared decision making for addressing diabetes self-care with an adolescent patient and parent advisory board. Methods: The patient and parent advisory board consisted of 6 adolescents (teens) between the ages 12 and 18 years with type 1 diabetes mellitus and their parents recruited through our institution’s Pediatric Diabetes Program. Teens and parents provided informed consent and participated in 1 or both of 2 patient and parent advisory board sessions, lasting 3 to 4 hours each. Session 1 topics were (1) patient-centered outcomes related to quality of life, parent-teen shared diabetes management, and shared family experiences; and (2) implementation and acceptability of a patient-centered diabetes care plan intervention where shared decision making was used. We analyzed audio recordings, notes, and other materials to identify and extract ideas relevant to the development of a patient-centered diabetes management plan. These data were visually coded into similar themes. We used the information to develop a prototype for a diabetes management plan tool that we pilot tested during session 2. Results: Session 1 identified 6 principal patient-centered quality-of-life measurement domains: stress, fear and worry, mealtime struggles, assumptions and judgments, feeling abnormal, and conflict. We determined 2 objectives to be principally important for a diabetes management plan intervention: (1) focusing the intervention on diabetes distress and conflict resolution strategies, and (2) working toward a verbalized common goal. In session 2, we created the diabetes management plan tool according to these findings and will use it in a clinical trial with the aim of assisting with patient-centered goal setting. Conclusions: Patients with type 1 diabetes mellitus can be effectively engaged and involved in patient-centered research design. Teens with type 1 diabetes mellitus prioritize reducing family conflict and fitting into their social milieu over health outcomes at this time in their lives. It is important to acknowledge this when designing interventions to improve health outcomes in teens with type 1 diabetes mellitus.
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    A comprehensive standardised data definitions set for acute coronary syndrome research in emergency departments in Australasia
    (2010-02) Cullen, Louise; Than, Martin; Brown, Anthony; Richards, Mark; Parsonage, William; Flaws, Dylan; Hollander, Judd; Christenson, Robert; Kline, Jeffrey A.; Goodacre, Steven; Jaffe, Alan
    Patients with chest discomfort or other symptoms suggestive of acute coronary syndrome are one of the most common categories seen in many Emergency Departments (EDs). Although the recognition of patients at high risk of acute coronary syndrome has improved steadily, identifying the majority of chest pain presentations who fall into the low-risk group remains a challenge. Research in this area needs to be transparent, robust, applicable to all hospitals from large tertiary centres to rural and remote sites, and to allow direct comparison between different studies with minimum patient spectrum bias. A standardized approach to the research framework using a common language for data definitions must be adopted to achieve this. The aim was to create a common framework for a standardized data definitions set that would allow maximum value when extrapolating research findings both within Australasian ED practice, and across similar populations worldwide. Therefore a comprehensive data definitions set for the investigation of non-traumatic chest pain patients with possible acute coronary syndrome was developed, specifically for use in the ED setting. This standardized data definitions set will facilitate‘knowledge translation’ by allowing extrapolation of useful findings into the real-life practice of emergency medicine.
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    Editorial Commentary: Addressing Confusion in the Diffusion of Archival Data Research
    (Wiley, 2021-07) Miller, Jason; Davis-Sramek, Beth; Fugate, Brian S.; Pagell, Mark; Flynn, Barbara B.; Kelley School of Business - Indianapolis
    Supply chain management researchers are increasingly using archival data to push boundaries of existing knowledge. Archival data provide opportunities to address new research questions and offer fresh perspectives on old questions. This editorial seeks to establish a common ground regarding research design, measurement validity, and endogeneity to help both authors and reviewers fully utilize archival data to advance supply chain management knowledge.
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    Editorial: Survey Research Design in Supply Chain Management: The Need for Evolution in Our Expectations
    (Wiley, 2017) Flynn, Barbara B.; Pagell, Mark; Fugate, Brian; Kelley School of Business - Indianapolis
    Survey research in supply chain management has been and will continue to be an important methodology in advancing theory and practice. However, supply chain scholars have multiple, divergent views regarding what is acceptable in terms of survey design, especially regarding respondents. We build on insights and commentaries provided by JSCM associate editors to develop and share general guidelines we will use during our tenure as editors to consider the rigor of survey research designs. We also outline ways that survey designs for supply chain research can be strengthened. The aim of this editorial was to clearly communicate expectations to the JSCM community, so that authors and reviewers can be more successful in advancing the theory and practice of supply chain management.
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    Engaging Patients with Heart Failure into the Design of Health System Interventions: Impact on Research Methods
    (2017-07-01) Newhouse, Robin P.; Johantgen, Meg; Thomas, Sue; Trocky, Nina; Dennison-Himmelfarb, Cheryl; Cheon, Jooyoung; Miller, Wanda; Gray, Tracy; Pruitt, Robin
    Purpose: To engage patients with heart failure (HF) to assess if changes are needed in a research study design, methods and outcomes when transferring interventions used in urban/community hospitals to rural hospital settings. Design: A qualitative structured interview was conducted. Method: Eight patients from two rural hospitals participated in an interview prior to discharge. Results: Patients validated the study design, measures and outcomes, but identified one area that should be added to the study protocol, symptom experience. Conclusion: Patient interviews validated that the intervention, methods and outcomes were important, but modifications to the study protocol resulted. Patient engagement in the conceptualization of patient centered outcome research is essential to guide the investigator approach to studies.