Browsing by Subject "end-of-life"

Now showing 1 - 4 of 4
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    Information needs at the end of life: a content analysis of one person's story
    (2004-01) Baker, Lynda
    Identifies the types of information often needed by terminally ill patients and their caregivers.
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    Palliative and End-of-Life Care After Severe Stroke.
    (Elsevier, 2022-05) Comer, Amber R.; Williams, Linda S.; Bartlett, Stephanie; D'Cruz, Lynn; Endris, Katlyn; Marchand, McKenzie; Zepeda, Isabel; Toor, Sumeet; Waite, Carly; Jawed, Areeba; Holloway, Robert; Creutzfeldt, Claire J.; Slaven, James E.; Torke, Alexia M.; Health Sciences, School of Health and Human Sciences
    Background and Objectives The distinct illness trajectory after acute ischemic stroke demands a better understanding of the utilization of palliative care consultations (PCC) for this patient cohort. This study sought to determine the prevalence, predictors, and outcomes associated with PCC for patients hospitalized with severe ischemic stroke. Methods This multicenter cohort study was conducted at four hospitals (2 comprehensive and 2 primary stroke centers) between January, 2016 and December, 2019. We included all patients with a discharge diagnosis of ischemic stroke and an initial National Institutes of Health Stroke Scale (NIHSS) of 10 or greater. We compared patient sociodemographic, clinical and care characteristics as well as hospital outcomes between patients who did and did not receive PCC. Results The study included 1297 patients hospitalized with severe ischemic stroke. PCC occurred for 20% of all patients and this proportion varied across institutions from 11.9% to 43%. Less than half (43%) of patients who died in the hospital. In multivaraible analysis, PCC was less likely in female patients (OR .76, 95% CI .59, .99, P=0.04) but more likely in patients with higher NIHSS (OR1.95, 95% CI 1,13, 3.37, P=0.02). Patients with PCC had higher rates of moving to a plan focused on comfort measures (CMO) (P<0.01) and removal of artificial nutrition as part of a move to CMO (P<0.01). In a sub analysis of patients who died in the hospital and received PCC, patients who died on or before hospital day 3 were less likely to receive PCC than patients who died on or after hospital day 4 (24% v. 51%) (P=<0.01). Conclusions Most patients with severe stroke do not receive PCC, even among those who experience in-hospital death. The results of this study indicate there are missed opportunities for PCC to help reduce suffering after severe stroke.
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    Research in Palliative and End-of-Life Communication and Training (RESPECT) Center: Year 3 2012-2013
    (Office of the Vice Chancellor for Research, 2013-04-05) Hickman, Susan E.; Haase, Joan E.; Sachs, Greg
    The mission of the Research in Palliative and End-of-Life Communication and Training (RESPECT) Center is to build a collaborative, interdisciplinary scientific community of researchers and clinicians to work together to advance the science of communication in palliative and end-of-life care across the lifespan. Center Goals: • Accelerate the development of innovative descriptive and intervention research trials relevant to communication and decision-making in children, adolescents, adults, and elders with serious and/or life-threatening illness • Develop new community partnerships for translational science to enhance palliative and end-of-life care research and practice • Create mentorship opportunities for developing scholars who will become the next generation of productive, passionate palliative and end-of-life care researchers The RESPECT Center is comprised of 19 faculty, 3 post-doctoral trainees and 3 staff members. Faculty meet twice a month to review and provide feedback to support the development of ideas and submission of research grants. In the 2011-2012 funding year, RESPECT Center faculty submitted 11 grants and received over $7.9 million dollars in funding, representing an increase of 21 % from the previous year. Additionally, faculty collaborated on the dissemination of findings and published XX articles on palliative and end-of-life care. The Center’s Visiting Scholar Series has hosted visits by 7 nationally recognized experts to consult with faculty and share their expertise with the community. On March 1, 2013, the RESPECT Center hosted a one-day statewide conference to bring together researchers and clinicians in Carmel, Indiana. The conference entitled, Translating Research into Best Practice: Improving Palliative and End-of-life Care, was attended by approximately 150 participants from 45 organizations. Finally, the RESPECT Center awarded 5 pilot study grants to help researchers develop critically important pilot data and continues to mentor developing scholars interested in the science of communication in palliative and end-of-life care.
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    Social Work Should Be More Proactive in Addressing the Need to Plan for End of Life
    (Oxford, 2016-11) Johnson, Kimberly J.; Hong, Michin; Inoue, Megumi; Adamek, Margaret E.; School of Social Work
    Few people engage in planning for life’s end and the prevalence of preparedness is particularly low in ethnic communities. As a profession, social work is well equipped to help increase planning for life’s end and the care people wish to receive. However, the profession cannot simply defer to those in hospice and palliative care settings to address this issue. There is a need for earlier and equitable access to death preparation, and social workers can be instrumental in helping to insure equal opportunities for proactive planning for death. The ways social work may become more proactive in assisting individuals and families to prepare for the end-of-life are discussed.