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Browsing by Subject "communication privacy management"
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Item Co-Ownership of Private Information in the Miscarriage Context(2014-12) Bute, Jennifer J.; Brann, MariaPregnancy loss due to miscarriage is a pervasive health issue. Although talking about the miscarriage experience with friends and family members has been linked to better adjustment, revealing this loss can be difficult because discussing a miscarriage often makes people uncomfortable. Moreover, couples often manage this information jointly as they decide whether to share the miscarriage with people outside the dyad. We conducted in-depth interviews with couples to explore the nature of co-ownership in the miscarriage context and to identify the privacy rules that couples develop to manage this information. We found that couples frame miscarriage as a shared but distinct experience and that both members exert rights of ownership over the information. Couples' privacy rules centered on issues of social support and others' need to know about the loss. Even though couples described their privacy rules as implicitly understood, they also recalled having explicit conversations to develop rules. We discuss how the management of co-owned information can improve communication and maintain relationships.Item Surrogate Decision Makers and Proxy Ownership: Challenges of Privacy Management in Health Care Decision Making(Taylor and Francis, 2015-08) Bute, Jennifer J.; Petronio, Sandra; Torke, Alexia M.; Department of Communication Studies, School of Liberal ArtsThis study explored the communicative experiences of surrogates who served as decision makers for patients who were unable to convey health information and choices about treatment options. Drawing on assumptions from communication privacy management theory (Petronio, 2002), 35 surrogates were interviewed to explore how they navigated the role of guardian of patients’ private health information while the patient was hospitalized. This research determined that not only are surrogates guardians and thereby co-owners of the patients’ private health information, they actually served in a “proxy ownership” role. Surrogates described obstacles to both obtaining and sharing private health information about the patient, suggesting that their rights as legitimate co-owners of the patients’ information were not fully acknowledged by the medical teams. Surrogates also described challenges in performing the proxy ownership role when they were not fully aware of the patient’s wishes. Theoretical and practical implications of these challenges are discussed.