Browsing by Subject "chronic illness"
Now showing 1 - 10 of 11
Results Per Page
Sort Options
Item Chronic Illness and Internalizing Symptomatology in a Transdiagnostic Clinical Sample of Youth(Oxford, 2020-07) Wolock, Elizabeth; Queen, Alexander; Rodriguez, Gabriela M.; Weisz, John R.; Psychiatry, School of MedicineObjective In research with community samples, children with chronic physical illnesses have shown elevated anxiety and depressive symptoms, compared to healthy peers. Less is known about whether physical illnesses are associated with elevated internalizing symptoms even among children referred for mental health treatment—a pattern that would indicate distinctive treatment needs among physically ill children receiving mental health care. We investigated the relationship between chronic physical illness and internalizing symptomatology among children enrolling in outpatient mental health treatment. Method A total of 262 treatment-seeking children ages 7–15 and their caregivers completed a demographic questionnaire, Child Behavior Checklist, and Youth Self-Report during a pre-treatment assessment. Physical illnesses were identified through caregiver report. Results There was no overall association between the presence/absence of chronic physical illness and parent- or child-reported symptoms. However, number of chronic physical illnesses was related to parent- and child-reported affective symptoms. Children with two or more chronic physical illnesses had more severe depressive symptoms than those with fewer physical illnesses. Conclusion Having multiple chronic illnesses may elevate children’s risk of depression symptomatology, even in comparison to other children seeking mental health care. This suggests a need to identify factors that may exacerbate depression symptoms in physically ill children who are initiating therapy and to determine whether different or more intensive services may be helpful for this group. The findings suggest the potential utility of screening for depression in youth with chronic physical illnesses, as well as addressing mental and physical health concerns during treatment.Item Chronic Illness in Children and Adolescents: Research on the Impact on Their Siblings(Office of the Vice Chancellor for Research, 2014-04-11) Richardson, Elizabeth A; Parker, Katherine MChronic illness affects over 7 million children and adolescents (i.e., children) in the United States with significant stress to their family members. Although a great deal of research has described the impact of chronic illness on family members, these studies focused on mothers. Siblings of children with chronic illness have received less attention. Before interventions can be developed to address the stress on siblings, we must first understand their experiences and needs related to living with children with chronic illness. The purpose of this project is to evaluate current research on the impact of children’s chronic illness on their siblings. We conducted a search of the literature using: Key words, siblings and children combined with chronic illness, physical illness, developmental disorder, or mental disorder to search articles in PsychINFO, CINAHL, and Web of Science databases. We did not limit searches by date but excluded dissertations and non-English language publications. We analyzed the total number of articles, purpose, and findings regarding impact of chronic illness on siblings. Results of the search yielded 431 on chronic illness. Of these 152, 119, and 44 articles were on physical illness, developmental disorder, and mental disorder respectively. Analyses led to inclusion of 97 articles on chronic illness, 53 articles on physical illness, 15 articles on developmental disorders, and four articles on mental disorder. Impact on siblings is mostly negative and includes emotional problems such as envy, fear, anxiety, anger, resentment, loneliness, and sadness; behaviors problems such as physical aggression, poor school performance and peer relationships. These factors as well as poor communication and knowledge deficits about the illness impact the siblings’ adjustment to chronic illness in children. Further, mental disorders are underrepresented in the literature on chronic illness and the impact on siblings. Research is needed to understand how children’s mental disorders impact their siblings.Item Development and initial testing of the self‐care of chronic illness inventory(Wiley, 2018-10) Riegel, Barbara; Barbaranelli, Claudio; Sethares, Kristen A.; Daus, Marguerite; Moser, Debra K.; Miller, Jennifer L.; Haedtke, Christine A.; Feinberg, Jodi L.; Lee, Solim; Stromberg, Anna; Jaarsma, Tiny; School of NursingAim The aim was to develop and psychometrically test the self‐care of chronic illness Inventory, a generic measure of self‐care. Background Existing measures of self‐care are disease‐specific or behaviour‐specific; no generic measure of self‐care exists. Design Cross‐sectional survey. Methods We developed a 20‐item self‐report instrument based on the Middle Range Theory of Self‐Care of Chronic Illness, with three separate scales measuring Self‐Care Maintenance, Self‐Care Monitoring, and Self‐Care Management. Each of the three scales is scored separately and standardized 0–100 with higher scores indicating better self‐care. After demonstrating content validity, psychometric testing was conducted in a convenience sample of 407 adults (enrolled from inpatient and outpatient settings at five sites in the United States and ResearchMatch.org). Dimensionality testing with confirmatory factor analysis preceded reliability testing. Results The Self‐Care Maintenance scale (eight items, two dimensions: illness‐related and health‐promoting behaviour) fit well when tested with a two‐factor confirmatory model. The Self‐Care Monitoring scale (five items, single factor) fitted well. The Self‐Care Management scale (seven items, two factors: autonomous and consulting behaviour), when tested with a two‐factor confirmatory model, fitted adequately. A simultaneous confirmatory factor analysis on the combined set of items supported the more general model. Conclusion The self‐care of chronic illness inventory is adequate in reliability and validity. We suggest further testing in diverse populations of patients with chronic illnesses.Item Differences among physical activity actigraphy algorithms in three chronic illness populations(2022) Alder, Megan L.; Still, Carolyn H.; Wierenga, Kelly L.; Pignatiello, Grant A.; Moore, Shirley M.Objectives: In three chronic illness populations and in a combined sample, we assessed differences in two algorithms to determine wear time (WT%) and four algorithms to determine: Kilocalories, light physical activity (PA), moderate-to-vigorous PA (MVPA), and metabolic equivalents (METs). Methods: Data were collected from 29 people living with HIV (PLHIV), 27 participants recovering from a cardiac event, and 15 participants with hypertension (HTN). Participants wore the ActiGraphTM wGT3X-BT for > 3 days on their hip. Analysis of variance (ANOVA) was used to assess differences among the algorithms. Results: No differences were found between the two algorithms to assess WT% or among the four algorithms to assess kilocalories in each of the chronic illness populations or in the combined sample. Significant differences were found among the four algorithms for light PA (p < .001) and METs (p < .001) in each chronic illness population and in the combined sample. MVPA was significantly different among the four algorithms in the PLHIV (p=.007) and in the combined sample (p < .001), but not in the cardiac (p=.064) or HTN samples (p=.200). Discussion: Our findings indicate that the choice of algorithm does make a difference in PA determination. Differences in algorithms should be considered when comparing PA across different chronic illness populations.Item Emotion Regulation in Chronic Disease Populations: An Integrative Review(Springer, 2017) Wierenga, Kelly L.; Lehto, Rebecca H.; Given, Barbara; School of NursingBackground and Purpose: Emotion regulation, the experiencing, processing, and modulating of emotional response, is necessary to manage the emotional stressors common in patients with chronic illness. Overwhelming emotional demands deplete the resources needed for everyday self-care management of chronic disease, contributing to poor health outcomes. Emotion regulation is shown to impact behaviors in healthy individuals; yet, a review of literature examining evidence of associations in chronically ill populations is lacking. The purpose of this article is to examine the state of the science relative to the impact of emotion regulation on health outcomes in chronic illness populations. Methods: Articles were reviewed (N = 14) that focused on emotion regulation and outcomes of patients with chronic illness. Results: Indicate that most of the studies focused on these concepts are cross-sectional and measure emotion regulation using various surveys. Potential relationships exist with increased age, male gender, higher education, decreased stress, depressive, and anxiety symptoms being associated with more adaptive emotion regulation. Of primary importance to patients with chronic illnesses is the potential link between greater difficulties with emotion regulation and the presence of chronic disease as well as poorer physical function. Implications for Practice: Care should include attention to affective regulation as well as physiologic responses of chronic illness.Item Informational Practices of Postacute Brain Injury Patients During Personal Recovery: Qualitative Study(JMIR, 2019) Masterson, Yamini; Brady, Erin; Miller, Andrew; Human-Centered Computing, School of Informatics and ComputingBackground: The effects of brain injury, structural damage, or the physiological disruption of brain function last far beyond initial clinical treatment. Self-tracking and management technologies have the potential to help individuals experiencing brain injury in their personal recovery—helping them to function at their best despite ongoing symptoms of illness. However, current self-tracking technologies may be unsuited for measuring the interconnected, nonlinear ways in which brain injury manifests. Objective: This study aimed to investigate (1) the current informational practices and sensemaking processes used by postacute brain injury patients during personal recovery and (2) the potential role of quality-of-life instruments in improving patient awareness of brain injury recovery, advocacy, and involvement in care used outside the clinical context. Our objective was to explore the means of improving awareness through reflection that leads to compensatory strategies by anticipating or recognizing the occurrence of a problem caused by impairment. Methods: We conducted a qualitative study and used essentialist or realist thematic analysis to analyze the data collected through semistructured interviews and questionnaires, 2 weeks of structured data collection using brain injury–specific health-related quality of life instrument, quality of life after brain injury (QoLIBRI), and final interviews. Results: Informational practices of people with brain injury involve data collection, data synthesis, and obtaining and applying the insights to their lifestyles. Participants collected data through structured tools such as spreadsheets and wearable devices but switched to unstructured tools such as journals and blogs as changes in overall progress became more qualitative in nature. Although data collection helped participants summarize their progress better, the lack of conceptual understanding made it challenging to know what to monitor or communicate with clinicians. QoLIBRI served as an education tool in this scenario but was inadequate in facilitating reflection and sensemaking. Conclusions: Individuals with postacute brain injury found the lack of conceptual understanding of recovery and tools for making sense of their health data as major impediments for tracking and being aware of their personal recovery. There is an urgent need for a better framework for recovery and a process model for choosing patient-generated health data tools that focus on the holistic nature of recovery and improve the understanding of brain injury for all stakeholders involved throughout recovery.Item Obesity as a chronic care challenge: new opportunities for social work practice(Taylor & Francis, 2020-08) Sullivan, Patrick; Kincaid, Zoraida; School of Social WorkWhile perhaps not garnering the attention of conditions like cancer or heart disease, or behavioral health conditions such as addiction and mental illness, obesity is emerging as a major health concern across the globe. While statistics vary, reports indicate that upwards of 2/3 of Americans can be considered overweight, while more than 30% can be labeled as obese. In recent years, obesity has become increasingly characterized as a chronic health condition, and as such, it is important to take a comprehensive, and long-term approach to care. Social workers should play a central role in reconfigured models of obesity care and given a growing recognition of this as an emerging social problem, such involvement is both needed, and appropriate.Item Relationship Between Cognitive Deficits and Duration of Illness in Early-Phase Schizophrenia(Office of the Vice Chancellor for Research, 2016-04-08) Ayoubi, Nawead Z.; Mehdiyoun, Nicole F.; Francis, Michael M.Schizophrenia is a chronic and disabling illness in which the etiology is unknown and there is no cure; approximately 1% of people have this disorder that costs an estimated $60 billion annually. The cognitive deficits associated with schizophrenia are a major facet of the disease and attribute to dysfunction in areas of attention, memory, and language. The inconsistencies and scarcity of literature examining the relationship between these cognitive deficits and duration of illness indicate need for this type of research. The primary aim of this study is to determine the correlation between cognitive deficits and duration of illness in early-phase schizophrenia. It is hypothesized that cognition and duration are indirectly related; this hypothesis will be tested using baseline cognitive data from A Double-Blind Trial of Adjunctive Valacyclovir to Improve Cognition in Early Phase Schizophrenia. These correlations can ultimately lead to the next step in discovering the cure for schizophrenia.Item Role Strains and Mood in Husbands of Women with Fibromyalgia Syndrome: A Test of the Stress Process Model(2008) Bigatti, Silvia M.; Lydon, Jennifer R.; Brothers, Brittany M.Spouses of patients experience role strains as a result of informal caregiving, which has been associated with mood in numerous research studies. However, most research is on female caregivers, and little is known about the experience of male spouses, or of the caregiving provided to fibromyalgia patients. The Stress Process Model was used to examine mediators and moderators of the relation between role strain and mood among 135 husbands of women with fibromyalgia. Results indicated that the more activities of daily living and instrumental activities of daily living performed by the husband, the greater the role strain. Role strain was associated with worse mood. A test of the Stress Process Model supported a partial mediation model, where social support and emotion-focused coping partially mediated the relation between role strain and mood. No evidence was found for a moderation model or for problem-focused coping as a mediator. Our research suggests significant impairment and caregiving needs among this patient population, which in turn relates to the mood of the husband who is also an informal caregiver. Our findings also support the Stress Process Model in explaining the complexity of caregiving effects. The results of the study suggest avenues for intervention for individuals strained by their partners’ illness.Item Systematic Review of the Literature for the Physician Orders for Life-Sustaining Treatment (POLST) Program(Office of the Vice Chancellor for Research, 2013-04-05) Keevern, Elisabeth M.; Hickman, Susan E.The Physician Orders for Life-Sustaining Treatment (POLST) program was developed in 1994 in order to translate patient treatment preferences regarding end-of-life care into immediately actionable physician’s orders, and can follow a patient through multiple care settings. A number of studies have been done on the POLST program to evaluate its efficacy and usefulness to residents and health care providers who deal with chronic illness and end-of-life care. However, because the program is relatively young, there is opportunity for more thorough research of the program and its impact on the field of end-of-life care. A systematic review of the literature was performed to summarize what is known about the POLST Program and identify areas for future research. The review of the literature yielded 12 studies focused on the POLST program: A majority (8 out of 12) studies were conducted in the long-term care setting; three were conducted in the community setting; and the remaining study focused on POLST’s use in the emergency response setting. Findings suggest that the kinds of orders documented on POLST differ depending on patient demographics and that providers’ overall opinion reflects that the program is both useful and beneficial. Several areas for future research were identified, including the program’s use in more diverse settings across the nation, barriers to POLST use, the quality of conversations regarding POLST, and patient and family experiences with the program.