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Item FUN WITH FACEBOOK: THE IMPACT OF FOCUS GROUPS ON THE DEVELOPMENT OF AWARENESS CAMPAIGNS FOR ADOLESCENT HEALTH(Office of the Vice Chancellor for Research, 2011-04-08) Sanematsu, Helen; Woodcox, Stephanie; Rickert, Vaughn I.Abstract Efforts at improving adolescent health through mass communication are frequently undertaken by corporate design firms using traditional design development methods. While such methods may create work that is aesthetically significant, their effect on their intended audience is often overlooked in the process. Left unaddressed are youth media consumption, existing knowledge of health issues, and youth social patterns. By conducting focus groups with local youth, we wanted to learn about 1) attitudes and prior knowledge about the areas identified in Indiana’s Adolescent Health Plan, and 2) consumption of media and preferences in programming Results Knowledge of adolescent health issues Designers learned first-hand youth attitudes toward adolescent health issues and relied on their findings to develop storylines, dialog, and casting decisions. Media consumption While television remains the most popular method of media consumption, social networking sites play a large role in determining what media youth consume. The connection to peers and information sharing enabled by Facebook presented the most potential for effective media development. Design deliverables These data resulted in development of public service announcements (PSAs) and a health survival booklet. PSAs resembled instant communication or ‘chats’ on Facebook and addressed topics of obesity, stress, vehicular safety, and substance abuse. The PSAs provide a familiar visual reference for youth while leveraging its social networking function for emotional impact. The booklets balance practical information with content intended to entertain as well as inform the reader.Item Fun with Facebook: The Impact of Focus Groups on the Development of Awareness Campaigns for Adolescent Health(2011-02) Sanematsu, HelenThis project presents a model for developing effective communication by directly engaging designers with their adolescent audience. By conducting focus groups with local youth, we wanted to learn about 1) attitudes and prior knowledge about the areas identified in Indiana's Adolescent Health Plan, and 2) consumption of media (how they consume popular culture and current events) and preferences in programming (what they consume—favorite shows, videos, music, etc.). An additional aspect of this project was the capacity of the design team to interpret and utilize focus group data. A related poster presentation is available from: http://hdl.handle.net/1805/4599Item Fun with Facebook: The Impact of Focus Groups on the Development of Awareness Campaigns for Adolescent Health (Poster)(2011) Sanematsu, Helen; Woodcox, Stephanie; Rickert, Vaughn I.Poster presentation regarding adolescent health and media consumption for the 2011 Society for Adolescent Health and Medicine Conference.Item Improving Adolescent Immunization Coverage: The Time to Act Is Now(Elsevier, 2017-11) Klein, Judy; Tan, Litjen; Zimet, Gregory D.; Pediatrics, School of MedicineAdolescent immunization rates continue to lag far behind infant immunization rates and millions of adolescents remain unprotected from serious and potentially deadly diseases. Adolescent Immunization: Understanding Challenges and Framing Solutions for Healthcare Providers, a whitepaper issued by the UNITY Consortium identifies best practices and common elements among successful adolescent immunization initiatives. The whitepaper, a collaboration of the group’s members, liaisons and invited experts, outlines the INSPECT(Immunization Neighborhood, Sharing, Platform, Educate, Champions and Talk) Imperatives, a call to action urging healthcare providers to increase adolescent immunization coverage rates by improving in one or more of the following areas: (1) Access -maximize opportunities for vaccination and avoid missed opportunities; (2) Education - educate parents and teens to further understanding of vaccines and to elevate prioritization; (3) Advocacy – guide healthcare providers to make confident, concise recommendations for all CDC-recommended adolescent vaccines, along with developing immunization champions who advocate for adolescent immunization within their practice or network; (4) Systems - advance technology, including the use of electronic immunization information systems (IIS), implement standing orders and other tools that improve efficiencies; and (5) Measurement - improve knowledge (and dissemination) of provider and practice progress on meeting adolescent immunization goals (e.g. benchmarking, performance reports).Item LEAH interdisciplinary training program(De Gruyter, 2016-08) Robbins, Cynthia L.; Rickert, Vaughn D.; Department of Pediatrics, IU School of MedicineThis article describes the Leadership Education in Adolescent Health (LEAH) interdisciplinary training program in the United States. The Maternal and Child Health Bureau authorized by legislation provides monies to train leaders in adolescent health through a competitive grant process. Currently, seven academic medical centers have funding to provide leadership in adolescent health (LEAH) training in five core disciplines: medicine, nursing, psychology, social work and nutrition. LEAH training programs both ensure high clinical competence in core disciplines serving adolescents and prepare trainees for leadership positions in adolescent health and public health care realms. Together, these programs trained almost 1000 long-term trainees across these five disciplines, and graduates from these programs are working in 45 of the 50 states within the United States. About 90% of these graduates are working with maternal and child/adolescent health populations, and almost all have held leadership positions in the areas of public health, advocacy, public policy, academic medical centers and/or clinical care settings.Item Preventive Care Use Among Justice-Involved and Non–Justice-Involved Youth(AAP, 2017-11) Aalsma, Matthew C.; Anderson, Valerie R.; Schwartz, Katherine; Ouyang, Fangqian; Tu, Wanzhu; Rosenman, Marc B.; Wiehe, Sarah E.; Pediatrics, School of MedicineBACKGROUND AND OBJECTIVES: Youth involved in the juvenile justice system (ie, arrested youth) are at risk for health problems. Although increasing preventive care use by justice-involved youth (JIY) is 1 approach to improving their well-being, little is known about their access to and use of care. The objective of this study was to determine how rates of well-child (WC) and emergency department visits, as well as public insurance enrollment continuity, differed between youth involved in the justice system and youth who have never been in the system. We hypothesized that JIY would exhibit less frequent WC and more frequent emergency service use than non–justice-involved youth (NJIY). METHODS: This was a retrospective cohort study of administrative medical and criminal records of all youth (ages 12–18) enrolled in Medicaid in Marion County, Indiana, between January 1, 2004, and December 31, 2011. RESULTS: The sample included 88 647 youth; 20 668 (23%) were involved in the justice system. JIY had lower use rates of WC visits and higher use rates of emergency services in comparison with NJIY. JIY had more and longer gaps in Medicaid coverage compared with NJIY. For all youth sampled, both preventive and emergency services use varied significantly by Medicaid enrollment continuity. CONCLUSIONS: JIY experience more and longer gaps in Medicaid coverage, and rely more on emergency services than NJIY. Medicaid enrollment continuity was associated with differences in WC and emergency service use among JIY, with policy implications for improving preventive care for these vulnerable youth.Item A retrospective and prospective look at strategies to increase adolescent HPV vaccine uptake in the United States(Taylor & Francis, 2018) Head, Katharine J.; Biederman, Erika; Sturm, Lynne A.; Zimet, Gregory D.; Pediatrics, School of MedicineThe HPV vaccine debuted more than ten years ago in the United States and many strategies have been evaluated to increase HPV vaccination rates, which include not only improving current vaccination behaviors but also sustaining these behaviors. Researchers and practitioners from a variety of backgrounds have engaged in this work, which has included efforts directed at public health and government policies, health education and health promotion programs, and clinical and patient-provider approaches, as well as work aimed to respond to and combat anti-HPV vaccination movements in society. Using a previously developed conceptual model to organize and summarize each of these areas, this paper also highlights the need for future HPV vaccine promotion work to adopt a multi-level and, when possible, integrated approach in order to maximize impact on vaccination rates.Item Social Networks for Human Papillomavirus Vaccine Advice Among African American Parents(Elsevier, 2019-04-05) Fu, Linda Y.; Zimet, Gregory D.; Latkin, Carl A.; Joseph, Jill G.; Pediatrics, School of MedicinePurpose Despite that human papillomavirus (HPV) vaccination could prevent ~90% of HPV-associated cancers, only 60.6% of American adolescents initiate vaccination. African Americans have the highest prevalence of morbidity and mortality from HPV-associated cancers. Mounting evidence suggests that advice from social contacts is associated with vaccine acceptance. The current study examines the associations of social processes with HPV vaccine refusal among African American parents. Methods A cross sectional survey was conducted among African American parents of children ages 10–12 years prior to a healthcare visit at which HPV vaccine was offered by the healthcare provider. Data from the 353 parents who named at least one social contact who advised them about vaccines were included in these analyses. Results Only 54.4% of the participants consented to HPV vaccination for their children. On average, parents had 2 to 3 social contacts who provided vaccine advice. Vaccine advice networks were generally dense, family-centric, and homophilous. Slightly over 80% of all parents trusted family members and friends for vaccine advice “some or “a lot.” Controlling for sociodemographic characteristics and reason for the healthcare visit, perceived high exposure to anti-HPV vaccine viewpoints and low exposure to pro-HPV vaccine viewpoints were both associated with HPV vaccine refusal (AOR=1.5, 95% CI=1.01, 2.3, and AOR=1.7, 95% CI=1.2, 2.6, respectively). Conclusions Social processes may be associated with HPV vaccine refusal among African American parents. Interventions designed to educate African American parents about HPV vaccine to increase uptake should consider leveraging vaccine advice networks for greater impact.Item Transitioning HIV-infected adolescents to adult care at 14 clinics across the United States: Using adolescent and adult providers’ insights to create multi-level solutions to address transition barriers(Taylor and Francis, 2017-10) Philbin, Morgan M.; Tanner, Amanda E.; Chambers, Brittany D.; Ma, Alice; Ware, Samuella; Lee, Sonia; Fortenberry, J. Dennis; Pediatrics, School of MedicineHIV-infected adolescents have disproportionately low rates of care retention and viral suppression. Approximately half disengage from care while transitioning to adult clinics, in part due to fragmented care systems and lack of streamlined protocols. We conducted 58 qualitative interviews with social service and health care providers across 14 Adolescent Trials Network clinics (n=28) and 20 adult clinics that receive transitioning adolescents (n=30) from August 2015 – June 2016. We used the constant comparative approach to examine processes, barriers, and facilitators of adult care transition. Transition barriers coalesced around three levels. Structural: insurance eligibility, transportation, and HIV-related stigma; Clinical: inter-clinic communication, differences in care cultures, and resource/personnel limitations; and Individual: adolescents’ transition readiness and developmental capacity. Staff-initiated solutions (e.g., grant-funded transportation) were often unsustainable and applied individual-level solutions to structural-level barriers. Comprehensive initiatives, which develop collaborative policies and protocols that support providers’ ability to match the solution and barrier level (i.e., structural-to-structural), are sorely needed. These initiatives should also support local systematic planning to facilitate inter-clinic structures and communication. Such approaches will help HIV-infected adolescents transition to adult care and improve long-term health outcomes.Item When Adolescent and Parents Disagree on Medical Plan, Who Gets to Decide?(AAP, 2019-08) Hopkins, Kali A.; Ott, Mary A.; Salih, Zeynep; Bosslet, Gabriel T.; Lantos, John; Pediatrics, School of MedicineDuchenne muscular dystrophy (DMD) is an X-linked autosomal recessive disease affecting 16 to 20 per 100 000 live births.1,2 It is characterized by progressive muscle weakness due to a defect in the dystrophin gene. It typically leads to loss of ambulation by age 8 to 14 years,1 followed by cardiomyopathy and respiratory failure. Historically, adolescents with DMD have died at ∼20 years of age.1–3 As respiratory compromise occurs, patients are supported with noninvasive ventilation (eg, nasal bilevel positive airway pressure).3–6 When this becomes unsuccessful, patients may be candidates for tracheostomy; this often happens in the second or third decade of life.7 The decision of whether to proceed with tracheostomy is complicated and is most often left to the patient and family. Family members do not always agree. We present a case in which acute illness forced a minor and his family to face this decision earlier than is typical. The adolescent desired a tracheostomy to extend his life. The parents did not believe that a tracheostomy was in his best interest and felt that comfort care was the most appropriate approach. Experts comment on the ethical issues raised by medical decision-making in cases involving adolescents and life-and-death decisions.