Browsing by Subject "Siblings"

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    Impact of Disruptive Behavior Disorder on Siblings Living with Affected Adolescents
    (Office of the Vice Chancellor for Research, 2015-04-17) Richardson, Elizabeth A.; Oruche, Ukamaka M.; Parker, Katherine M.
    Disruptive behavior disorder (DBD) is a mental disorder that includes Oppositional Defiant Disorder and Conduct Disorder. DBD affects 10% of adolescents in the United States with significant stress on the entire family. Research has described the impact of chronic illness on family members but have focused mostly on primary caregivers or mothers. Even fewer studies considered DBD and how it impacts siblings. Before interventions can be developed to address the impact on siblings, we must first understand the experiences they have as a result of living with an adolescent with DBD. The aim of this report was to describe the impact on siblings who live with adolescents with DBD. The report is part of a larger qualitative descriptive study about experiences and needs of family member of adolescents with DBD. The samples for this report were 16 siblings who were 9 to 23 years, 75% male, and 75% Black. We interview siblings in their homes; audio recorded and transcribed all data. Three researchers conducted content analysis of their narratives. We grouped the data into four topics: positive impact, negative impact, interventions and/or coping mechanisms used to address impact, and what the siblings need for support. Siblings said (1) stress, blanket punishment, planned or desired activity disruption, and physical attack as negative impact; avoidance, utilization of anger management techniques, and reacting with violence as coping mechanisms; (3) the adolescents need more treatment, the family members need better communication, financial assistance, and more time together. Siblings did not describe any positive impact of DBD. Our findings reinforce the negative impact on siblings of adolescents with DBD; adds to the literature by its inclusion of a large African American sample; and supports nurses’ role in assessing the impact of DBD on siblings of the affected adolescents.
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    "We are a family with diabetes": Parent perspectives on siblings of youth with type 1 diabetes
    (American Psychological Association, 2021) Cao, Viena T.; Anderson, Barbara J.; Eshtehardi, Sahar S.; McKinney, Brett M.; Thompson, Deborah I.; Marrero, David G.; Hilliard, Marisa E.; Pediatrics, School of Medicine
    Having a child with type 1 diabetes (T1D) impacts the entire family system. Parental distress and burden have been well studied, but other family members, including siblings, have received little attention. Based on research about family life and sibling experiences in other chronic condition populations (e.g., autism, cancer), we expected parents of youth with T1D would report that siblings participated in T1D management and that T1D had a psychological impact on siblings. As part of a larger qualitative study, parents of youth with T1D age 5-17 (M = 10.8 ± 3.6 years) participated in semistructured interviews about T1D-specific health-related quality of life. For this study, we conducted secondary analyses on transcripts from 20 parents (95% mothers) from households with at least 1 sibling of the child with T1D. Three themes emerged: (a) siblings share the workload and help with T1D management, (b) T1D takes an emotional toll on siblings, and (c) parents feel guilty about prioritizing T1D over siblings' needs and desires. Parents recognized siblings have impactful roles in T1D management and family functioning. Future research into these themes can guide clinical and research efforts to develop sibling-inclusive resources and interventions for families with T1D. Enhancing family-focused interventions to recognize and support the needs of siblings may ultimately improve family T1D-related quality of life.