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Item Developing a targeted English-language curriculum and materials for Latino caregivers of infants with special needs as part of a NICU pre-discharge education program(Office of the Vice Chancellor for Research, 2015-04-17) Connor, Ulla; Rodgers, Rylin; Traversa, Ana; Akers, Jennifer; Gokpinar-Shelton, Esen; Lorch, MattHealthcare disparities in the Latino community are well documented; Latino infants with special healthcare needs are at high risk of mortality or poor health outcomes and have difficulty obtaining specialty care. Poor English-language skills add an additional layer of vulnerability. Existing health-related English-language curricula address adult, not pediatric health concerns. A clear need exists for short-term health-related English-language education programs to develop survival communication skills in low-literacy Limited English Proficiency (LEP) caregivers. International Center for Intercultural Communication (ICIC) and Family Voices Indiana (FVI) are collaborating to develop and facilitate a targeted English-language curriculum for LEP Latino caregivers of infants with special healthcare needs at Riley Children’s Hospital. ICIC brings expertise in English-for-Specific-Purposes (ESP) program development; FVI serves parents of children with special healthcare needs, including LEP parents, and brings the ability to make such a program meaningful and useful to our target population. The first stage of the project is currently ending, and has featured • Needs-analysis data collection onsite through the observation of current education modules with Latino parents at Riley Hospital as well as surveys of relevant healthcare providers and other hospital staff, followed by • The development of a curriculum, instructional materials, and pre-post intervention assessments based on the identified needs. The second stage will feature the actual intervention and will involve working with a minimum of six (6) low-literacy/low-proficiency caregivers to • Improve their health-related English for the specific purposes of communicating with their infants’ physicians and other healthcare staff while at Riley, • Facilitate communication after discharge, • Increase their readiness to engage in community ESL classes, and • Ensure eventual adaptability of the curriculum for ESL caregivers of various language backgrounds, stronger language or literacy skills, a variety of healthcare contexts, and the larger pediatric population. The post-intervention stage will feature data analysis with the purpose of assessing the viability of the curriculum and materials, and will lead to revisions. ICIC will also train FVI facilitators to offer the program to the population they serve. ICIC will then work with Indiana University Research and Technology Corporation (IURTC) to copyright and license the final curriculum and materials.Item Developing a targeted English-language curriculum and materials for Latino caregivers of infants with special needs as part of a NICU pre-discharge education program(Office of the Vice Chancellor for Research, 2016-04-08) Rueckert, Daniel; Gokpinar-Shelton, EsenAbstract: Latino infants with special healthcare needs are at high risk of mortality and have difficulty obtaining specialty care. Poor English-language skills of the caregivers add an additional layer of vulnerability. Existing health-related English-language programs address adult, but not pediatric health concerns. A clear need exists for short-term health-related English-language education programs to develop survival communication skills in low-literacy Limited English Proficiency (LEP) caregivers. To fill this need for intervention, the International Center for Intercultural Communication (ICIC) at IUPUI collaborated with Family Voices Indiana, a family advocacy group, and created a grant-funded series of classes to be taught in a one-on-one setting at Riley Hospital for Latino LEP parents of Neonatal Intensive Care Unit (NICU) babies. The goal of the study is to provide these parents with the English language competency to take an active part in the medical decision making and care of their children. An additional goal of the program is to improve families' ability to enroll in local English as Second Language programs in the community. The findings will be discussed in three parts: We will first feature the needs-analysis period followed by the development of a curriculum, instructional materials, and pre-post intervention assessments based on the identified needs. Second, we will feature the actual intervention and will involve cases from working with low-literacy/low-proficiency caregivers. Third, we will discuss the post-intervention stage and feature data analysis with the purpose of assessing the viability of the curriculum and materials that would lead to revisions. The project is designed to ensure eventual adaptability of the curriculum for ESL caregivers of various language backgrounds, stronger language or literacy skills, a variety of healthcare contexts, and the larger pediatric population.