Browsing by Subject "Community engaged research"

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    Barriers and facilitators to participating in Alzheimer’s disease biomarker research in Black and White older adults
    (Wiley, 2023-06-05) Eliacin, Johanne; Polsinelli, Angelina J.; Epperson, Francine; Gao, Sujuan; Van Heiden, Sarah; Westmoreland, Glenda; Richards, Ralph; Richards, Mollie; Campbell, Christopher; Hendrie, Hugh; Risacher, Shannon L.; Saykin, Andrew J.; Wang, Sophia; Medicine, School of Medicine
    Introduction: The study examined Black and White prospective participants' views of barriers to and facilitators of participation in Alzheimer's disease (AD) biomarker research. Methods: In a mixed-methods study, 399 community-dwelling Black and White older adults (age ≥55) who had never participated in AD research completed a survey about their perceptions of AD biomarker research. Individuals from lower socioeconomic and education backgrounds and Black men were over-sampled to address perspectives of traditionally under-represented groups. A subset of participants (n = 29) completed qualitative interviews. Results: Most participants expressed interest in biomarker research (overall 69%). However, Black participants were comparatively more hesitant than White participants (28.9% vs 15.1%), were more concerned about study risks (28.9% vs 15.1%), and perceived multiple barriers to participating in brain scans. These results persisted even after adjusting for trust and perceived knowledge of AD. Information was a primary barrier (when absent) and incentive (when provided) for AD biomarker research participation. Black older adults desired more information about AD (eg, risk, prevention), general research processes, and specific biomarker procedures. They also desired return of results to make informed decisions about their health, research-sponsored community awareness events, and for researchers to mitigate the burden placed on participants in research (eg, transportation, basic needs). Conclusion: Our findings increase representativeness in the literature by focusing on individuals with no history of AD research experience and those from traditionally underrepresented groups in research. Results suggest that the research community needs to improve information sharing and raising awareness, increase their presence in the communities of underrepresented groups, reduce incidental costs, and provide valuable personal health information to participants to increase interest. Specific recommendations for improving recruitment are addressed. Future studies will assess the implementation of evidence-based, socioculturally sensitive recruitment strategies to increase enrollment of Black older adults into AD biomarker studies. HIGHLIGHTS: Individuals from under-represented groups are interested in Alzheimer's disease (AD) biomarker research. After adjusting for trust and AD knowledge, Black participants were still more hesitant .Information is a barrier (when absent) to and incentive (when given) for biomarker studies. Reducing burden (e.g., transportation) is essential for recruiting Black older adults.
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    The Future of Philanthropy: Technology Integration for the Public Good
    (2024-03) Miyakozawa, Arisa; Herzog, Patricia Snell; Badertscher, Katherine; Onishi, Tamaki
    The purpose of the study is to understand the influence of technological changes on philanthropic community partners. The scholarly literature on the use of technology by philanthropic organizations is limited. The first objective is to understand the impact of technological innovation on philanthropic organizations as community partners. The second objective is to consider the future work in the philanthropic sector. To achieve these objectives, this research adopted qualitative research methods: informational interviews were conducted with representatives of philanthropic organizations that are integrating technology. Additionally, analysis incorporated organizational profiles, missions, and information about the issues these organizations seek to address. These interviews informed case studies that show five themes. The five key themes for the future of philanthropy are: the role of technology, the irreplaceable human touch, the importance of community, accessibility to data and software, and the promotion of transparency. Finally, based on these themes four recommendations are given for future workers - students and job seekers - looking for opportunities in the philanthropic sector. The contribution of this thesis is providing initial insights on the use of technology by philanthropic organizations, how they envision the future, and what the implications are for emerging philanthropy practitioners.