Browsing by Subject "Community engagement"

Now showing 1 - 10 of 17
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    159 Community Engagement (CE) Brokers: Diversity and the Science of CE
    (Cambridge University Press, 2022-04-19) Piechowski, Patricia; Claxton, Gina; Spencer, Nicola; Vasile, Elizabeth; Zender, Robynn; Indiana Clinical and Translational Sciences Institute (CTSI), School of Medicine
    OBJECTIVES/GOALS: Since 2013, managers of community engagement (CE) programs across the Clinical and Translational Science Award (CTSA) consortium funded by the National Center for Advancing Translational Sciences (NCATS) have convened monthly to build connections, share knowledge, and enable collaboration. METHODS/STUDY POPULATION: Notable for focus on staff leadership, the CE Brokers group has been central to the ongoing success of CTSA community engagement partnerships and approaches to research. In early 2022, a survey of the 139-member group asked about their roles and responsibilities, the ways the CE Brokers network has contributed to their hubs adoption and development of best practices and innovations, resources and lessons learned, and the creation of opportunities for members to collaboratively conduct and disseminate original research, and research on the science of community engagement. The survey also asked CE Brokers if they or their community partners are part of an underrepresented community. RESULTS/ANTICIPATED RESULTS: These demographic data will be shared, along with analyses of data on growth of the group over time, evolving themes, and a SWOT analysis completed in 2021. DISCUSSION/SIGNIFICANCE: This will provide a platform to explore new avenues for the CE Brokers and their impact within the NCATS CTSA consortium, in line with the evolving direction of the clinical and translational research enterprise.
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    A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project
    (Elsevier, 2022) Butler, Catherine R.; Appelbaum, Paul S.; Ascani, Heather; Aulisio, Mark; Campbell, Catherine E.; de Boer, Ian H.; Dighe, Ashveena L.; Hall, Daniel E.; Himmelfarb, Jonathan; Knight, Richard; Mehl, Karla; Murugan, Raghavan; Rosas, Sylvia E.; Sedor, John R.; O'Toole, John F.; Tuttle, Katherine R.; Waikar, Sushrut S.; Freeman, Michael; Kidney Precision Medicine Project; Medicine, School of Medicine
    An understanding of the ethical underpinnings of human subjects research that involves some risk to participants without anticipated direct clinical benefit-such as the kidney biopsy procedure as part of the Kidney Precision Medicine Project (KPMP)-requires a critical examination of the risks as well as the diverse set of countervailing potential benefits to participants. This kind of deliberation has been foundational to the development and conduct of the KPMP. Herein, we use illustrative features of this research paradigm to develop a more comprehensive conceptualization of the types of benefits that may be important to research participants, including respecting pluralistic values, supporting the opportunity to act altruistically, and enhancing benefits to a participant's community. This approach may serve as a model to help researchers, ethicists, and regulators to identify opportunities to better respect and support participants in future research that entails some risk to these participants as well as to improve the quality of research for people with kidney disease.
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    Co-creating culturally responsive resources with communities. The challenges of online research
    (2022-04) Garcia, Silvia; Colgan, Susana; Gil, Cindy
    The presentation is about the experience of a team of IUPUI and community researchers doing online research with the participation of a group of parents in the IPS Newcomer program. The research was aimed at producing culturally relevant college and career resources for parents of Newcomer Latino students. The presentation summarizes the challenges of online community-engaged research.
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    Community Engagement: Evaluation of the JPMorgan Chase Foundation - IUPUI Near Eastside Legacy Initiative
    (2014-04-11) Garcia, Silvia; Bennett, Teresa; Fitzpatrick, Christine
    In early 2011, the IUPUI Solution Center received a $75,000, two-year grant from the JPMorgan Chase Foundation to facilitate faculty and student involvement in the Near Eastside of Indianapolis to promote community health and wellness. The project emerged from the community’s stated need to increase efforts that improve the overall health and fitness and provide affordable access to fitness, wellness, educational opportunities and health-related resources to residents of the Near Eastside. A comprehensive assessment to measure the program efficacy, cost-effectiveness and impact yielded that the JPMorgan Chase Foundation – IUPUI Near Eastside Legacy Initiative (CHASE/NELI) increased awareness of and activity in the Chase Near Eastside Legacy Center and promoted health and wellness, through targeted communication and public health awareness strategies.
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    Community-Engaged Research. How IUPUI faculty engages the community in research activities
    (2019-05-21) Garcia, Silvia
    Academic researchers who conduct research with and in the community use different approaches that reflect the richness of epistemologies and disciplinary backgrounds that inform community scholarship. Although there is extensive literature explaining the principles and methods of “community-engaged research”, there seem to be different understandings of how these principles translate into the research practice. This work describes how IUPUI faculty members that claimed in a survey to be community-engaged scholars involve the community in research activities. We analyzed the narratives of fifty-one tenured and tenure-track faculty members who were interviewed to explore their lived experiences in their work with communities on research or creative activity projects. Four predominant practices of engagement were identified in their narratives. These practices reflect differences in their research paradigm, the expected research outcomes, and their conceptualization of the participant community.
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    CTSA 2 Community: www.ctsa2community.org
    (2011-08-31) Ackermann, Ronald; Hardwick, Emily; Comer, Karen; Hudson, Brenda; Odell, Jere D.; Arenson, Andrew; Barnett, Bill; McGuire, Patrick; Derr, Michelle; Reid, Tisha; Vandergraff, Donna; Marrero, David G.
    This poster describes the development an accessible, user-driven, and sustainable web resource for community and academic experts working together to identify, adopt, and implement a wide array of community engaged research infrastructures for enhancing community engagement in all forms of clinical and translational research. CTSA2Community aims to be a storage place for valuable resources referring to the set-up and running of a community engagement program. Resources are provided by experts in the field of community engagement.
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    Design and Implementation of the Diabetes Impact Project: A Multisector Partnership to Reduce Diabetes Burden in Indianapolis Communities
    (Wolters Kluwer, 2023) Staten, Lisa K.; Weathers, Tess D.; Nicholas, Celeste; Grain, Tedd; Haut, Dawn P.; Duckett-Brown, Patrice; Halverson, Paul K.; Caine, Virginia; Community and Global Health, School of Public Health
    Context: Community-level health disparities have not arisen suddenly but are the result of long-term systemic inequities. This article describes the design and implementation of a community-engaged multisector partnership to address health disparities by reducing the diabetes burden in 3 Indianapolis communities through the implementation of evidence-based strategies across the prevention continuum. Program: The project has 5 foundational design principles: engage partners from multiple sectors to address community health, focus on geographic communities most affected by the health disparity, practice authentic community engagement, commit for the long term, and utilize a holistic approach spanning the prevention continuum. Implementation: The design principles are incorporated into the following project components in each community: (1) health system community health workers (hCHWs), (2) neighborhood CHWs (nCHWs), (3) community health promotion initiatives, and (4) resident steering committees, as well as a backbone organization responsible for overall coordination, project communication, evaluation, and partnership coordination. Evaluation: This complex multilevel intervention is being evaluated using data sources and methodologies suited to each project component and its purpose overall. Each component is being evaluated independently and included holistically to measure the impact of the project on the health and culture of health in the communities. Key Performance Indicators were established upon project initiation as our common metrics for the partnership. Because complex interventions aiming at population-level change take time, we evaluate Diabetes Impact Project-Indianapolis Neighborhoods (DIP-IN), assuming its impact will take many years to achieve. Discussion: Health disparities such as the diabetes prevalence in project communities have not arisen suddenly but are the result of long-term systemic inequities. This complex issue requires a complex holistic solution with long-term commitment, trusted partnerships, and investment from diverse sectors as seen in this project. Implications for policy and practice include the need to identify stable funding mechanisms to support these types of holistic approaches.
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    Editorial: Service Learning, Educational Innovation and Social Transformation
    (Frontiers Media, 2022) Bringle, Robert G.; Santos Rego, Miguel A.; Regueiro, Bibiana; Psychology, School of Science
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    Guia para el cuidado de los dientes y boca para personas de Guatemala, El Salvador y Honduras
    (2019-06) Maupome, Gerardo; Gil, Cindy; Briceno, Firany; Aguilar, Rafael; Armenta, Karla
    This is a dental health navigation manual for the Hispanic population. This group is disproportionately affected by dental health problems, perhaps the worst situation for people from Central America. An advisory group was organized, composed of people from three Central American countries: El Salvador, Honduras, and Guatemala. Along with community input, the team developed the “Guia para el cuidado de los dientes y boca” navigation manual.
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    Guia para Padres: Opciones al finalizar la escuela secundaria
    (2021-07) Garcia, Silvia; Colgan, Susana; Fox, Sarah; Gil, Cindy; King, Gloria; Wolf, Devin; Ness, Morgan
    This Parent’s Guide was produced in collaboration with a group of mothers and fathers of the Newcomer Program of the Indianapolis Public Schools (IPS) who participated in online meetings and activities between September 2020 and June 2021. During the meetings, the parents shared their hopes and dreams about their children's future and their questions and concerns about how to find resources and information to achieve those dreams. The guide was co-developed in response to the information needs raised by parents during the meetings.