Browsing by Subject "Biospecimens"

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    Collecting Biospecimens and Obtaining Biobank Consent From Patients in an Academic Health Care Setting: Practical and Ethical Considerations
    (Wolters Kluwer, 2022-01) Kasperbauer, T. J.; Waltz, Amy; Hudson, Brenda; Hawryluk, Bridget; Moore, Courtney; Schmidt, Karen; Schwartz, Peter H.; Medicine, School of Medicine
    Academic health centers and health systems increasingly ask patients to enroll in research biobanks as part of standard care, raising important practical and ethical questions for integrating biobank consent processes into health care settings. This article aims to assist academic health centers and health systems considering implementing these integrated consent processes by outlining the 5 main issues—and the key practical and ethical considerations for each issue—that Indiana University Health and the Indiana Biobank faced when integrating biobank consent into their health system, as well as the key obstacles encountered. The 5 main issues to consider include the specimen to collect (leftover, new collection, or add-ons to clinical tests), whether to use opt-in or opt-out consent, where to approach patients, how to effectively use digital tools for consent, and how to appropriately simplify consent information.
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    Genomics, bio specimens, and other biological data: Current status and future directions
    (Wiley, 2018-10) Rosenstein, Barry S.; Rao, Arvind; Moran, Jean M.; Spratt, Daniel E.; Mendonca, Marc S.; Al-Lazikani, Bissan; Mayo, Charles S.; Speers, Corey; Radiation Oncology, School of Medicine