Browsing by Author "Tong, Allison"

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    CORRECTION TO: Living Well with Kidney Disease by patient and care‑partner empowerment: Kidney Health for Everyone Everywhere
    (SpringerLink, 2021) Kalantar‑Zadeh, Kamyar; Li, Philip Kam‑Tao; Tantisattamo, Ekamol; Kumaraswami, Latha; Liakopoulos, Vassilios; Lui, Siu‑Fai; Ulasi, Ifeoma; Andreoli, Sharon; Balducci, Alessandro; Dupuis, Sophie; Harris, Tess; Hradsky, Anne; Knight, Richard; Kumar, Sajay; Ng, Maggie; Poidevin, Alice; Saadi, Gamal; Tong, Allison; Pediatrics, School of Medicine
    Correction to: Journal of Nephrology (2021) 34:381–388 10.1007/s40620-021-01000-6
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    Frontline interdisciplinary clinician perspectives on caring for patients with COVID-19: a qualitative study
    (BMJ, 2021-05-01) Rao, Hassan; Mancini, Diana; Tong, Allison; Khan, Humaira; Gutierrez, Brissa Santacruz; Mundo, William; Collings, Adriana; Cervantes, Lilia; Medicine, School of Medicine
    Objective To describe the drivers of distress and motivations faced by interdisciplinary clinicians who were on the frontline caring for patients with COVID-19. Design 50 semistructured interviews. Transcripts were analysed using qualitative thematic analysis. Setting A safety-net hospital in Denver, Colorado. Participants Interdisciplinary frontline clinicians including physicians, advance practice providers, nurses, respiratory therapists and paramedics providing inpatient hospital care to patients hospitalised for COVID-19. Results Fifty clinicians (32 women and 18 men) participated. Five themes with respective subthemes (in parentheses) were identified: depersonalisation and barriers to care (impeding rapport and compassion, focusing on infection risk at the expense of high-quality care, grief from witnessing patients suffer in isolation), powerless in uncertainty (inescapable awareness of personal risk, therapeutic doubt in a void of evidence, confronting ethical dilemmas, struggling with dynamic and unfamiliar challenges), overwhelmed and exhausted (burden of personal protective equipment (PPE), information overload and confusion, overstretched by additional responsibilities at work, compounded by personal life stressors, feeling vulnerable and dispensable, compassion fatigue, distress from the disproportionate impact on socially oppressed communities), bolstering morale and confidence (motivated by community and family support, equipped with data), and driven by moral duty (responsibility to patient care and community, collegial solidarity and collaboration, contributing to the greater good). Conclusion Frontline clinicians reported distress due to the challenges of PPE, uncertainty and powerlessness, new responsibilities at work and home, losing control of their schedules, grief from witnessing patients suffer in isolation and witnessing healthcare disparities exacerbated by this pandemic. Clinicians feel supported by their colleagues, families, and community and were driven by a sense of moral duty. Healthcare system should adopt strategies to minimise distress faced by interdisciplinary clinicians on the frontline of COVID-19.
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    Living well with kidney disease by patient and care partner empowerment: kidney health for everyone everywhere
    (Oxford, 2021-02) Kalantar-Zadeh, Kamyar; Li, Philip Kam-Tao; Tantisattamo, Ekamol; Kumaraswami, Latha; Liakopoulos, Vassilios; Lui, Siu-Fai; Ulasi, Ifeoma; Andreoli, Sharon; Balducci, Alessandro; Dupuis, Sophie; Harris, Tess; Hradsky, Anne; Knight, Richard; Kumar, Sajay; Ng, Maggie; Poidevin, Alice; Saadi, Gamal; Tong, Allison; Pediatrics, School of Medicine
    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of ‘Living Well with Kidney Disease’ in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policymakers, applicable to both developed and developing countries.
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    Living Well with Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere
    (Oxford, 2021-02) Kalantar-Zadeh, Kamyar; Li, Philip Kam-Tao; Tantisattamo, Ekamol; Kumaraswami, Latha; Liakopoulos, Vassilios; Lui, Siu-Fai; Ulasi, Ifeoma; Andreoli, Sharon; Balducci, Alessandro; Dupuis, Sophie; Harris, Tess; Hradsky, Anne; Knight, Richard; Kumar, Sajay; Ng, Maggie; Poidevin, Alice; Saadi, Gamal; Tong, Allison; Pediatrics, School of Medicine
    Living with CKD is associated with hardships for patients and their care-partners. Empowering patients and care-partners may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.