Browsing by Author "Purnell, Tanjala S."

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    Barriers to access in pediatric living‐donor liver transplantation
    (Wiley, 2019-09) Mogul, Douglas B.; Lee, Joy; Purnell, Tanjala S.; Massie, Allan B.; Ishaque, Tanveen; Segev, Dorry L.; Bridges, John F. P.; Medicine, School of Medicine
    Children receiving a LDLT have superior post‐transplant outcomes, but this procedure is only used for 10% of transplant recipients. Better understanding about barriers toward LDLT and the sociodemographic characteristics that influence these underlying mechanisms would help to inform strategies to increase its use. We conducted an online, anonymous survey of parents/caregivers for children awaiting, or have received, a liver transplant regarding their knowledge and attitudes about LDLT. The survey was completed by 217 respondents. While 97% of respondents understood an individual could donate a portion of their liver, only 72% knew the steps in evaluation, and 69% understood the donor surgery was covered by the recipient's insurance. Individuals with public insurance were less likely than those with private insurance to know the steps for LDLT evaluation (44% vs 82%; P < 0.001). Respondents with public insurance were less likely to know someone that had been a living donor (44% vs 56%; P = 0.005) as were individuals without a college degree (64% vs 85%; P = 0.007). Nearly all respondents generally trusted their healthcare team. Among respondents, 82% believed they were well‐informed about LDLT but individuals with public insurance were significantly less likely to feel well‐informed (67% vs 87%; P = 0.03) and to understand how donor surgery might impact donor work/time off (44% vs 81%; P = 0.001). Substantial gaps exist in parental understanding about LDLT, including its evaluation, potential benefits, and complications. Greater emphasis on addressing these barriers, especially to individuals with fewer resources, will be helpful to expand the use of LDLT.
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    Bridging Community, History, and Culture in Personal Informatics Tools: Insights from an Existing Community-Based Heart Health Intervention for Black Americans
    (ACM, 2022-01) Martin-Hammond, Aqueasha; Purnell, Tanjala S.; Human-Centered Computing, School of Informatics and Computing
    A healthy diet and increased physical activity are essential for reducing the prevalence of cardiovascular disease and related deaths, a worldwide public health concern that disproportionately affects Black American communities. Still, Black Americans can face unique challenges meeting dietary and physical activity requirements due to inequities in access and quality of care, environmental and local factors, and difficulties in changing individual health behaviors. Personal informatics and self-tracking tools are one way of increasing awareness of health behaviors to motivate behavior change. However, there are still gaps in knowledge about what encourages different users to engage with personal informatics tools over time, particularly when used in collaborative, community-health settings. This paper contributes a nuanced understanding of fifteen participants' reasons for engaging in an existing community-based health education and behavior change program that combines collaborative self-tracking with culturally relevant content and social engagement to motivate heart-healthy behaviors. We illustrate participants' positive and negative experiences engaging in self-tracking and collaborative tasks during the program. We also discuss how participants envision that integrating technology might support or hinder participant engagement and the work of deploying community-based public health interventions. Finally, we discuss design implications for culturally informed, community-based personal informatics tools that engage Black American's in heart-healthy activities.
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    A Circle of Friends: Persuasive Tools to Improve Heart Health
    (ACM, 2020-01) Sanders, Jamie; Glenn-Smith, Ina; Purnell, Tanjala S.; Martin-Hammond, Aqueasha; Charleston, Jeanne; Human-Centered Computing, School of Informatics and Computing
    Cardiovascular disease (CVD) is the leading causes of death in the United States and worldwide. While CVD risk factors are well-known and many can be changed with diet and exercise, more research is needed to understand how to design effective interventions that help patients reduce CVD risk. In this paper, we present the results of a content analysis of the Health Freedom Circle of Friends (COF) Walking Program, a community-based health program run by a public health non-profit that has been shown to reduce CVD risks. We examine the design to better understand the persuasive tools used as well as parts of the design that might benefit from a technological intervention.