Browsing by Author "Nafiseh, Amira A."

Now showing 1 - 3 of 3
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    Clinical Findings and Evaluation of Newborns Who Were Anonymously Surrendered
    (American Medical Association, 2024-01-02) Liepmann, Claire D.; Nafiseh, Amira A.; Carlucci, James G.; Enane, Leslie A.; Pediatrics, School of Medicine
    This cohort study examines clinical findings, medical treatment, and outcomes for infants in Indiana who were surrendered under Safe Haven laws.
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    Global Health Partnerships During the COVID-19 Pandemic: Perspectives and Insights from International Partners
    (ASTMH, 2021-08) McHenry, Megan S.; Tam, Reena P.; Nafiseh, Amira A.; Etling, Mary Ann; Barnes, Adelaide E.; Rule, Amy R. L.; Crouse, Heather L.; Haq, Heather; Morris, Lee E.; Murray, Brittany L.; Umphrey, Lisa A.; Keating, Elizabeth M.; Pediatrics, School of Medicine
    Global health partnerships (GHPs) have encountered many challenges during the coronavirus disease 2019 (COVID-19) pandemic. New perspectives and insights are needed to guide GHPs when navigating current and future collaborations. This study aimed to understand perspectives and insights of international partners regarding how the COVID-19 pandemic impacted their GHPs with institutions in the United States. We performed a cross-sectional qualitative study conducted through virtual semi-structured interviews performed between June 12, 2020 and July 22, 2020. We queried academic institutions based in the United States to refer individuals from their corresponding international GHP organizations. We invited these individuals to participate in virtual interviews that were audio-recorded and transcribed. We analyzed data qualitatively to identify themes. Eighty-four United States partners provided e-mail addresses for international partners. Ten individuals from these GHPs completed the interview. Participants reported overall positive experiences with their United States-based partners during the pandemic. The following themes emerged: imbalanced decision-making; worry about partnership continuity; opportunity to optimize communication within partnerships; interest in incorporating technology to facilitate engagement; and a desire for increased bilateral exchanges. Several challenges appeared to exist before COVID-19 and were highlighted by the pandemic. Most respondents were optimistic regarding the future of their GHPs. However, concerns were expressed regarding the implications of fewer in-person international experiences with United States trainees and the desire for stronger communication. Although our results do not represent the perspectives and insights of all GHPs, they provide considerations for the future. We urge institutions in the United States to re-examine and strive for equitable relationships with their international partners.
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    “If it benefits someone, it will be good:” perspectives on research participation from pregnant women living with HIV
    (T&F, 2022) Raciti, Catherine G.; Marsha, Joy; Nafiseh, Amira A.; Masese , Eric R.; Apondi, Edith; McHenry, Megan S.; Pediatrics, School of Medicine
    Pregnant women living with HIV (PWLHIV) are becoming increasingly involved in HIV research; however, the ethical concerns regarding their decision-making related to research participation are understudied. This qualitative study aimed to understand the perspectives and lived research experiences of PWLHIV, intending to identify important considerations to inform best practices. This study used semi-structured interviews (SSIs) of PWLHIV who participated in research studies in Eldoret, Kenya. All interviews were audio-recorded, transcribed, and translated. Qualitative analyses were performed, with line-by-line coding, constant comparison, axial coding, and triangulation to identify central concepts. Twelve PWLHIV participated. Overall, participants had positive experiences with HIV research. Most participants had difficulty distinguishing the differences between the research process and enhanced clinical care. They reported a willingness to participate in future HIV research studies and indicated altruism as the primary motivator. Participants identified their preferences and experiences with recruitment, consenting, reimbursement, and enrolment of infants in HIV research. The largest barrier for participating in HIV research was identified as a concern that participation would lead to HIV disclosure. By understanding the lived experiences of PWLHIV who participate in HIV research, future researchers can design studies and consenting processes to optimize ethical research practices.