Browsing by Author "Knoppers, Bartha M."

Now showing 1 - 3 of 3
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    Building a data sharing model for global genomic research
    (Genome Biology, 2014) Kosseim, Patricia; Edward, Dove; Baggaley, Carman; Meslin, Eric M.; Cate, Fred H.; Kaye, Jane; Harris, Jennifer R.; Knoppers, Bartha M.
    Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement , combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally.
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    Building a data sharing model for global genomic research
    (BioMed Central, 2014-08-11) Kosseim, Patricia; Dove, Edward S.; Baggaley, Carman; Meslin, Eric M.; Cate, Fred H.; Kaye, Jane; Harris, Jennifer R.; Knoppers, Bartha M.; Department of Medicine, IU School of Medicine
    Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally.
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    RESEARCH ETHICS. Ethics review for international data-intensive research
    (American Association for the Advancement of Science, 2016-03-25) Dove, Edward S.; Townend, David; Meslin, Eric M.; Bobrow, Martin; Littler, Katherine; Nicol, Dianne; de Vries, Jantina; Junker, Anne; Garattini, Chiara; Bovenberg, Jasper; Shabani, Mahsa; Lévesque, Emmanuelle; Knoppers, Bartha M.; Indiana University Center for Bioethics, IU School of Medicine