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Browsing by Author "Hudson, Brenda"
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Item 4409 Indiana Clinical & Translational Science Monon Collaborative – Community Impact Hubs(Cambridge University Press, 2020-07-29) Wiehe, Sarah; Craig, David M.; Wilcox, Matthew; Hardwick, Emily; Lawrence, Carrie; Schicho, Fiona; Hudson, Brenda; Pediatrics, School of MedicineOBJECTIVES/GOALS: Conduct an environmental scan of Marion County (Indianapolis) neighborhoods using electronic medical record data, state health data, and social and economic data. Develop strong network of community collaborators. Conduct a thorough assessment for each targeted neighborhood by listening and understanding the pressing health issues in the community and working together to design and deliver solutions. METHODS/STUDY POPULATION: Identify measures in the 3 domains of vulnerability, health and assets for the targeted neighborhoods and conduct bivariate descriptive statistics and multivariable regression analyses to investigate association between measures of vulnerability and health outcomes. Initiate relationships with leaders and residents in targeted neighborhoods. Locate organizations working in targeted neighborhoods through online mapping software and word-of-mouth at neighborhood events, and created a spreadsheet with contact information. Conduct multidisciplinary assessment (i.e. key informant interviews, focus groups, town hall meetings) of the targeted neighborhood. Iteratively synthesize assessments to develop areas of interest and relevance to the community. Develop a road map for solutions identified by the community. RESULTS/ANTICIPATED RESULTS: The results from the environmental scan conducted will be displayed in a report and visual “map” of health outcomes and health determinants, including assets and barriers for the targeted neighborhoods. The research team will use results from the environmental scan coupled with listening activities including attendance at community events, key informant interviews and focus groups to develop relationships and strong collaborations with the targeted neighborhood stakeholders. The relationship building between the research team and community will provide increased trust and engagement that will further enhance the effectiveness of the assessments completed with the targeted neighborhood. The assessments will help to empower communities to develop sustainable solutions and drive future work that will lead to future grant applications and larger-scale implementation in other community impact hub neighborhoods. DISCUSSION/SIGNIFICANCE OF IMPACT: Through the community impact hub work, we will develop collaborative efforts with targeted neighborhoods with the greatest health inequities in the Marion County area. In partnership with these neighborhoods, we will build a foundation – a network of community collaborators and a focused plan – upon which we will improve the health outcomes of residents while learning best practices on how to do so.Item Collecting Biospecimens and Obtaining Biobank Consent From Patients in an Academic Health Care Setting: Practical and Ethical Considerations(Wolters Kluwer, 2022-01) Kasperbauer, T. J.; Waltz, Amy; Hudson, Brenda; Hawryluk, Bridget; Moore, Courtney; Schmidt, Karen; Schwartz, Peter H.; Medicine, School of MedicineAcademic health centers and health systems increasingly ask patients to enroll in research biobanks as part of standard care, raising important practical and ethical questions for integrating biobank consent processes into health care settings. This article aims to assist academic health centers and health systems considering implementing these integrated consent processes by outlining the 5 main issues—and the key practical and ethical considerations for each issue—that Indiana University Health and the Indiana Biobank faced when integrating biobank consent into their health system, as well as the key obstacles encountered. The 5 main issues to consider include the specimen to collect (leftover, new collection, or add-ons to clinical tests), whether to use opt-in or opt-out consent, where to approach patients, how to effectively use digital tools for consent, and how to appropriately simplify consent information.Item CTSA 2 Community: www.ctsa2community.org(2011-08-31) Ackermann, Ronald; Hardwick, Emily; Comer, Karen; Hudson, Brenda; Odell, Jere D.; Arenson, Andrew; Barnett, Bill; McGuire, Patrick; Derr, Michelle; Reid, Tisha; Vandergraff, Donna; Marrero, David G.This poster describes the development an accessible, user-driven, and sustainable web resource for community and academic experts working together to identify, adopt, and implement a wide array of community engaged research infrastructures for enhancing community engagement in all forms of clinical and translational research. CTSA2Community aims to be a storage place for valuable resources referring to the set-up and running of a community engagement program. Resources are provided by experts in the field of community engagement.Item How to Request and Obtain Feasibility Numbers and Data for Research through the Regenstrief Data Core and the Indiana CTSI Informatics and Data Analysis Core (CIDAC)(Office of the Vice Chancellor for Research, 2015-04-17) Hoover, Sarah; Kesterson, Joe; Smith, Faye; Hudson, BrendaThis poster presents a one-page, high-level summary view targeted at investigators and other individuals who have need to request numbers for research, explaining the process wherein requests can be made for feasibility and/or research data. Individuals seeking data for feasibility and/or research projects may utilize web based forms to make requests. Requests are tracked and managed by the Regenstrief Data Core. There are separate forms for Feasibility/Preliminary requests and Research Data requests. The purpose of this poster is to familiarize researchers with: Where to locate these forms on the Indiana CTSI website The steps needed to fill out and submit the appropriate request form The events that transpire between making the request and receiving data In addition, a description of available services through CIDAC and the Regenstrief Data Core is provided, included but not limited to expertise in study planning and implementation, assistance with subject recruitment and management and prospective descriptive clinical and demographic data.Item "I Am Interested!": The Voices of the Community and Their Participation in Health Advisory Boards(Mary Ann Liebert, 2024-01-08) Sotto-Santiago, Sylk; Wiehe, Sarah; Claxton, Gina; Stamper, Gavin; Delp, Lindsey; Hudson, Brenda; Lynch, Dustin; Moe, Sharon; Pediatrics, School of MedicineIntroduction: Researchers can often be challenged by meaningful efforts to involve the public and communities in research. Community and health advisory boards (HABs) offer an opportunity to create a fully intentional and honest relationship between researchers and the community. Objective: Most recently, the All Indiana (IN) for Health HAB had four openings and a call was published to our community of over 13,800 individuals in the All IN for Health newsletter. Four hundred eighty-eight individuals submitted applications to become part of the board. In what follows, we share the lessons in motivations and interests of individuals who responded. Methods: The application process included the following questions: What lived experiences and/or personal interests have motivated you to be involved in All IN for Health? Please explain why you are interested in being an All IN for HAB member. Our analysis approach was qualitative and centered on narrative research. Results: We organize the findings in two categories: Motivation and Interests. Individuals were motivated to participate based on family or friend diagnosis, personal diagnosis, roles as caregivers, desire to impact change and advocacy, role as health professional, and previous participation in research. Interests followed similar themes beginning with crediting their interest to a diagnosis. In addition, we categorized desire to share their experience, personal positionality, and previous research experience, and contributing to the education of student/trainee. Conclusion: By understanding motivations, we understand needs. This information can be used for other advisory boards, as well as recruitment into research participation and health care advocacy.Item Indiana CTSI Research Recruitment Office(Office of the Vice Chancellor for Research, 2011-04-08) Hudson, BrendaThe Indiana CTSI Research Recruitment Office was designed to engage and empower the public in health research. We also work to inform Health Care Providers about research opportunities for their patients, develop collaborative relationships with industry and organizational partners and provide support through infrastructure, services, and opportunities to the research community at the various institutions associated with the Indiana CTSI. By working from within the Indiana CTSI, we can help link people with the best resources for research recruitment. Whether you are an Indiana resident looking to participate in a study, a Health Care Provider trying to identify a research study for a patient, a researcher trying to find participants, or an industry partner trying to build collaborations, we can help!Item INresearch.org(Office of the Vice Chancellor for Research, 2011-04-08) Hudson, BrendaThe purpose of developing INresearch.org is to engage the public in research by giving them the opportunity to take a more proactive role in research while also allowing them to gain a better understanding of the types of research available through the universities and our clinical partners. Parents, legal guardians and caregivers have the ability to register themselves and/or their children or other dependent individuals. Users are also able to modify any of their personal information entered and/or the information about their dependents whenever it is convenient for them, making the amount of information shared by the individual completely customizable. Finally, users have the ability to remove themselves, and/or their constituents at any time and for any reason. INresearch.org allows the users to be connected to investigators by allowing investigators to contact volunteers about studies that are occurring locally. It is our hope that INresearch.org will be a valuable recruitment tool and help increase research participation for all institutions associated with the Indiana CTSI.