Browsing by Author "Hoover, Sarah"

Now showing 1 - 3 of 3
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    How to Request and Obtain Feasibility Numbers and Data for Research through the Regenstrief Data Core and the Indiana CTSI Informatics and Data Analysis Core (CIDAC)
    (Office of the Vice Chancellor for Research, 2015-04-17) Hoover, Sarah; Kesterson, Joe; Smith, Faye; Hudson, Brenda
    This poster presents a one-page, high-level summary view targeted at investigators and other individuals who have need to request numbers for research, explaining the process wherein requests can be made for feasibility and/or research data. Individuals seeking data for feasibility and/or research projects may utilize web based forms to make requests. Requests are tracked and managed by the Regenstrief Data Core. There are separate forms for Feasibility/Preliminary requests and Research Data requests. The purpose of this poster is to familiarize researchers with: Where to locate these forms on the Indiana CTSI website The steps needed to fill out and submit the appropriate request form The events that transpire between making the request and receiving data In addition, a description of available services through CIDAC and the Regenstrief Data Core is provided, included but not limited to expertise in study planning and implementation, assistance with subject recruitment and management and prospective descriptive clinical and demographic data.
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    An Integrated Surveillance System to Examine Testing, Services, and Outcomes for Sexually Transmitted Diseases
    (IOS, 2017) Dixon, Brian E.; Tao, Guoyu; Wang, Jane; Tu, Wanzhu; Hoover, Sarah; Zhang, Zuoyi; Batteiger, Teresa A.; Arno, Janet N.; Epidemiology, School of Public Health
    Despite laws that require reporting of sexually transmitted diseases (STDs) to governmental health agencies, integrated surveillance of STDs remains challenging. Data and information about testing are fragmented from information on treatment and outcomes. To overcome this fragmentation, data from multiple electronic systems spanning clinical and public health environments were integrated to create an STD surveillance registry. Electronic health records, disease case records, and birth registry records were linked and then stored in a de-identified, secure server for use by health officials and researchers. The registry contains nearly 6 million tests for 628,138 individuals over a 12-year period. The registry supports efforts to understand the epidemiology of STDs as well as health services and outcomes for those diagnosed with STDs. Specialized disease registries hold promise for collaboration across clinical and public health domains to improve surveillance efforts, reduce health disparities, and increase prevention efforts at the local level.
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    Leveraging Health Information Exchange to Construct a Registry for Traumatic Brain Injury, Spinal Cord Injury and Stroke in Indiana
    (2018-04-16) Rahurkar, Saurabh; McFarlane, Timothy D.; Wang, Jane; Hoover, Sarah; Hammond, Flora; Kean, Jacob; Dixon, Brian E.; Epidemiology, School of Public Health
    Traumatic brain injury (TBI), spinal cord injury (SCI) and stroke are conditions of interest to public health as they can result in long-term outcomes and disabilities. Specialized registries can facilitate public health surveillance, however only 4% of hospitals in the United States actively engage in electronic reporting to these registries. We leveraged electronic claims and clinical data from a health information exchange to create a statewide TBI/SCI/Stroke registry to facilitate the study of long-term outcomes and health services utilization. The registry contains 109,943 TBI patients, 9,027 SCI patients and 117,084 stroke patients with a mean of 3 years of follow-up data after injury. Additionally, the registry contains data on individual patient encounters, prescriptions and clinical variables. The high-dimensional data with large sample sizes may present a valuable informatics resource for injury research as well as public health surveillance.