Browsing by Subject "patient engagement"

Now showing 1 - 8 of 8
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    Engaging Patients with Heart Failure into the Design of Health System Interventions: Impact on Research Methods
    (2017-07-01) Newhouse, Robin P.; Johantgen, Meg; Thomas, Sue; Trocky, Nina; Dennison-Himmelfarb, Cheryl; Cheon, Jooyoung; Miller, Wanda; Gray, Tracy; Pruitt, Robin
    Purpose: To engage patients with heart failure (HF) to assess if changes are needed in a research study design, methods and outcomes when transferring interventions used in urban/community hospitals to rural hospital settings. Design: A qualitative structured interview was conducted. Method: Eight patients from two rural hospitals participated in an interview prior to discharge. Results: Patients validated the study design, measures and outcomes, but identified one area that should be added to the study protocol, symptom experience. Conclusion: Patient interviews validated that the intervention, methods and outcomes were important, but modifications to the study protocol resulted. Patient engagement in the conceptualization of patient centered outcome research is essential to guide the investigator approach to studies.
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    Finding the Patient’s Voice Using Big Data: Analysis of Users’ Health-Related Concerns in the ChaCha Question-and-Answer Service (2009–2012)
    (JMIR, 2016) Priest, Chad; Knopf, Amelia; Groves, Doyle; Carpenter, Janet S.; Furrey, Christopher; Krishnan, Anand; Miller, Wendy R.; Otte, Julie L.; Palakal, Mathew; Wiehe, Sarah E.; Wilson, Jeffrey S.; IU School of Nursing
    Background: The development of effective health care and public health interventions requires a comprehensive understanding of the perceptions, concerns, and stated needs of health care consumers and the public at large. Big datasets from social media and question-and-answer services provide insight into the public’s health concerns and priorities without the financial, temporal, and spatial encumbrances of more traditional community-engagement methods and may prove a useful starting point for public-engagement health research (infodemiology). Objective: The objective of our study was to describe user characteristics and health-related queries of the ChaCha question-and-answer platform, and discuss how these data may be used to better understand the perceptions, concerns, and stated needs of health care consumers and the public at large. Methods: We conducted a retrospective automated textual analysis of anonymous user-generated queries submitted to ChaCha between January 2009 and November 2012. A total of 2.004 billion queries were read, of which 3.50% (70,083,796/2,004,243,249) were missing 1 or more data fields, leaving 1.934 billion complete lines of data for these analyses. Results: Males and females submitted roughly equal numbers of health queries, but content differed by sex. Questions from females predominantly focused on pregnancy, menstruation, and vaginal health. Questions from males predominantly focused on body image, drug use, and sexuality. Adolescents aged 12–19 years submitted more queries than any other age group. Their queries were largely centered on sexual and reproductive health, and pregnancy in particular. Conclusions: The private nature of the ChaCha service provided a perfect environment for maximum frankness among users, especially among adolescents posing sensitive health questions. Adolescents’ sexual health queries reveal knowledge gaps with serious, lifelong consequences. The nature of questions to the service provides opportunities for rapid understanding of health concerns and may lead to development of more effective tailored interventions. [J Med Internet Res 2016;18(3):e44]
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    The Impact of Information Technology on Patient Engagement and Health Behavior Change: A Systematic Review of the Literature
    (JMIR, 2016) Sawesi, Suhila; Rashrash, Mohamed; Phalakornkule, Kanitha; Carpenter, Janet S.; Jones, Josette F.; Department of BioHealth Informatics, School of Informatics and Computing
    Background: Advancements in information technology (IT) and its increasingly ubiquitous nature expand the ability to engage patients in the health care process and motivate health behavior change. Objective: Our aim was to systematically review the (1) impact of IT platforms used to promote patients' engagement and to effect change in health behaviors and health outcomes, (2) behavior theories or models applied as bases for developing these interventions and their impact on health outcomes, (3) different ways of measuring health outcomes, (4) usability, feasibility, and acceptability of these technologies among patients, and (5) challenges and research directions for implementing IT platforms to meaningfully impact patient engagement and health outcomes. Methods: PubMed, Web of Science, PsycINFO, and Google Scholar were searched for studies published from 2000 to December 2014. Two reviewers assessed the quality of the included papers, and potentially relevant studies were retrieved and assessed for eligibility based on predetermined inclusion criteria. Results: A total of 170 articles met the inclusion criteria and were reviewed in detail. Overall, 88.8% (151/170) of studies showed positive impact on patient behavior and 82.9% (141/170) reported high levels of improvement in patient engagement. Only 47.1% (80/170) referenced specific behavior theories and only 33.5% (57/170) assessed the usability of IT platforms. The majority of studies used indirect ways to measure health outcomes (65.9%, 112/170). Conclusions: In general, the review has shown that IT platforms can enhance patient engagement and improve health outcomes. Few studies addressed usability of these interventions, and the reason for not using specific behavior theories remains unclear. Further research is needed to clarify these important questions. In addition, an assessment of these types of interventions should be conducted based on a common framework using a large variety of measurements; these measurements should include those related to motivation for health behavior change, long-standing adherence, expenditure, satisfaction, and health outcomes. [JMIR Med Inform 2016;4(1):e1]
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    Interactive systems for patient-centered care to enhance patient engagement
    (Oxford, 2016-01) Tang, Charlotte; Lorenzi, Nancy; Harle, Christopher A.; Zhou, Xiaomu; Chen, Yunan; Health Policy and Management, School of Public Health
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    Missing links: challenges in engaging the underserved with health information and communication technology
    (ACM, 2016-05) Wright, Maria D.; Flanagan, Mindy E.; Kunjan, Kislaya; Doebbeling, Bradley N.; Toscos, Tammy; BioHealth Informatics, School of Informatics and Computing
    We sought to understand underserved patients' preferences for health information technology (HIT) and examine the current use of personal health records (PHRs) in Community Health Centers (CHCs) serving low-income, uninsured, and underinsured patients. Forty-three patients and 49 clinic staff, administrators, and providers from these CHC systems were interviewed using open-ended questions assessing patient experience, perceptions of the CHC, access barriers, strategies used to overcome access barriers, technology access and use, and clinic operations and workflow. All seven CHC systems were at some stage of implementing PHRs, with two clinics having already completed implementation. Indiana CHCs have experienced barriers to implementing and using PHRs in a way that provides value for patients or providers/staff There was a general lack of awareness among patients regarding the existence of PHRs, their benefits and a lack of effective promotion to patients. Most patients have access to the internet, primarily through mobile phones, and desire greater functionality in order to communicate with CHCs and manage their health conditions. Despite decades of research, there remain barriers to the adoption and use of PHRs. Novel approaches must be developed to achieve the desired impact of PHRs on patient engagement, communication and satisfaction. Our findings provide a roadmap to greater engagement of patients via PHRs by expanding functionality, training both patients and clinic providers/staff, and incorporating adult learning strategies.
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    The Relationship Between Race, Patient Activation, and Working Alliance: Implications for Patient Engagement in Mental Health Care
    (Springer, 2016) Eliacin, Johanne; Coffing, Jessica M.; Matthias, Marianne S.; Burgess, Diana J.; Bair, Matthew J.; Rollins, Angela L.; Department of Psychology, School of Science
    This study explored the relationship between race and two key aspects of patient engagement—patient activation and working alliance—among a sample of African-American and White veterans (N = 152) seeking medication management for mental health conditions. After adjusting for demographics, race was significantly associated with patient activation, working alliance, and medication adherence scores. Patient activation was also associated with working alliance. These results provide support for the consideration of race and ethnicity in facilitating patient engagement and patient activation in mental healthcare. Minority patients may benefit from targeted efforts to improve their active engagement in mental healthcare.
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    Seeing is Engaging: Vlogs as a Tool for Patient Engagement
    (Springer, 2017-06) Lee, Joy L.; Frey, Mary; Frey, Peter; Hollin, Ilene; Wu, Albert W.; Department of Medicine, School of Medicine
    Video blogs (‘vlogs’ – pronounced as one syllable) are a popular platform for conveying know-how online and can be used as a tool for patient engagement. It can be challenging to engage patients in their own care, and the unique attributes of vlogs overcome some of the barriers to engagement such as high treatment burden and a lack of the sense of community. While some clinicians may distrust social media and question its place in patient care, we present The Frey Life, one example of a patient vlog, to show how the platform models and fosters engagement, and provides the patient perspective. We discuss potential concerns regarding health vlogs, and suggest implications for physicians, researchers, and medical institutions regarding how to use patient vlogs as a resource.
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    Supporting Collaborative Health Tracking in the Hospital: Patients’ Perspectives
    (ACM, 2018) Mishra, Sonali R.; Miller, Andrew D.; Haldar, Shefali; Khelifi, Maher; Eschler, Jordan; Elera, Rashmi G.; Pollack, Ari H; Pratt, Wanda; Human-Centered Computing, School of Informatics and Computing
    The hospital setting creates a high-stakes environment where patients’ lives depend on accurate tracking of health data. Despite recent work emphasizing the importance of patients’ engagement in their own health care, less is known about how patients track their health and care in the hospital. Through interviews and design probes, we investigated hospitalized patients’ tracking activity and analyzed our results using the stage-based personal informatics model. We used this model to understand how to support the tracking needs of hospitalized patients at each stage. In this paper, we discuss hospitalized patients’ needs for collaboratively tracking their health with their care team. We suggest future extensions of the stage-based model to accommodate collaborative tracking situations, such as hospitals, where data is collected, analyzed, and acted on by multiple people. Our findings uncover new directions for HCI research and highlight ways to support patients in tracking their care and improving patient safety.