Mustafa, RafidBrosch, Jared R.Rabinovici, Gil D.Dickerson, BradCarrillo, Maria C.Glazier, BradGao, SujuanTierney, MarthaFargo, Keith N.Austrom, Mary G.De Santi, SusanClark, David G.Apostolova, Liana2019-07-022019-07-022018-01Mustafa, R., Brosch, J. R., Rabinovici, G. D., Dickerson, B. C., Carrillo, M. C., Glazier, B. S., … Apostolova, L. G. (2018). Patient and Caregiver Assessment of the Benefits From the Clinical Use of Amyloid PET Imaging. Alzheimer disease and associated disorders, 32(1), 35–42. doi:10.1097/WAD.0000000000000220https://hdl.handle.net/1805/19813INTRODUCTION: Few studies to date have explored patient and caregiver views on the clinical use of amyloid positron emission tomography (PET). METHODS: A 7-item questionnaire assessing patient and caregiver views (510 total respondents) toward amyloid PET imaging was advertised broadly through alz.org/trialmatch. RESULTS: We received 510 unique responses from 48 US states, 2 Canadian provinces, the Dominican Republic, and Greece. Both patients and caregivers indicated that they would want to receive amyloid imaging if offered the opportunity. Over 88% of respondents had a positive response (∼10% with neutral and 2% with negative responses) to whether amyloid PET should be offered routinely and be reimbursed. Such information was felt to be useful for long-term legal, financial, and health care planning. Respondents identifying with early age cognitive decline (younger than 65 y) were more likely to explore options for disability insurance (P=0.03). Responders from the Midwest were more likely to utilize information from amyloid imaging for legal planning (P=0.02), disability insurance (P=0.02), and life insurance (P=0.04) than other US regions. DISCUSSION: Patients and caregivers supported the use of amyloid PET imaging in clinical practice and felt that the information would provide significant benefits particularly in terms of future planning.en-USPublisher PolicyAmyloidPositron emission tomography (PET)Clinical useAlzheimer’s disease (AD)PatientCaregiverArticle