Stone, Cynthia L.Henderson, Macey LeighDixon, BrianHarle, ChrisMenachemi, NirHolmes, AnnFry-Revere, Sigrid2016-09-212018-09-062016-05-24https://hdl.handle.net/1805/11007http://dx.doi.org/10.7912/C2/2828Indiana University-Purdue University Indianapolis (IUPUI)Living donors have contributed about 6,000 kidneys per year in the past 10 years, but more than 100,000 individuals are still waiting for a kidney transplant. Living kidney donors undergo a major surgical procedure without direct medical benefit to themselves, but comprehensive follow-up information on living donors’ health is unfortunately limited. Expert recommendations suggest capturing clinical information beyond traditional sources to improve surveillance of co-morbid conditions from living kidney donors. Currently the United Network for Organ Sharing is responsible for collecting and reporting follow-up data for all living donors from U.S. transplant centers. Under policy implemented in February of 2013, transplant centers must submit follow-up date for two years after donation, but current processes often yield to incomplete and untimely reporting. This dissertation uses a statewide Health Information Exchange as a new clinical data source to 1) retrospectively identify a cohort of living kidney donors, 2) understand their follow-up care patterns, and 3) observe selected clinical outcomes including hypertension, diabetes and post-donation renal function.en-USHealth information technologyHealth policyKidney diseaseKidney transplantationLiving donationOrgan donationOrgan donorsKidneys -- TransplantationTransplantation of organs, tissues, etc.Informed consent (Medical law)Patient education -- StandardsMedical informaticsMedical records -- Data processingDissertation10.7912/C2G30T