Miller, Wendy R.Von Gaudecker, JaneTanner, AndreaBuelow, Janice M.2020-07-202020-07-202020-06-25Miller, W. R., Von Gaudecker, J., Tanner, A., & Buelow, J. M. (2020). Epilepsy self-management during a pandemic: Experiences of people with epilepsy. Epilepsy & Behavior, 111, 1–6. https://doi.org/10.1016/j.yebeh.2020.1072381525-5050https://hdl.handle.net/1805/23278This article is made available for unrestricted research re-use and secondary analysis in any form or be any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.The purpose of this descriptive study was to, from the perspective of adult people with epilepsy (PWE) and caregivers of PWE, explore the effects of the current pandemic and resulting societal changes on epilepsy self-management. Ninety-four respondents completed a mixed-methods quantitative and qualitative survey focused on their epilepsy self-management experiences during the coronavirus disease-19 (COVID-19) pandemic. Respondents noted significant disruption in epilepsy self-management. Lack of ability to obtain medications or see epilepsy providers, as well as increased stress, social isolation, and changes in routine were all reported as troublesome, and more than one-third of the sample reported an increase in seizure frequency since the onset of the pandemic. Suggestions are given regarding how to support PWE during future COVID-19 outbreaks and to better prepare PWE and their caregivers for any life-altering events, such as a pandemic, with robust self-management skills that will allow them to maintain the highest level of function possible.en-USPublic Health EmergencyCOVID-19EpilepsyEpilepsy Self-ManagementNursingSurveyArticle